Joshua’s SOD Blog

Day 33 – Monday 1st June 2009 – Stem Cell Treatment Number 7

June 1st, 2009

We all had a good nights sleep, but had to wake up early so that Josh could have his milk and breakfast before his cut-off point.

Today is Children’s Day in China, and all the staff brought a gift round to all of the children on the 20th floor. Also all the staff had their photo taken with Josh and the other children. Josh had a lovely teddy bear, its so sweet. He didn’t think too much of it at first, as it takes Josh a while to sus-out new toys etc.

He had his electrical wave therapy and standing sessions as normal this morning, and Linda said that she would try and re-arrange her appointments so that we could squeeze his physio in before he had his treatment, and she did, except it only lasted about 10 minutes. This was because Josh had a tantrum, which we think was because he was hungry, poor thing!

Nurses Kitty and Catherine then came round at 2pm to place the IV line in before going to theatre. They struggled to find a vein again, his poor feet are covered in bruises. Once they found a vein, it didn’t take them long at all to get the line in. At 2:25pm, they took him down to the theatre on the 3rd floor for his spinal. He looked so small sitting up on the big cot trolley. They then gave him the anaesthetic to make him sleep, and he actually fell asleep sat upright, and we had to lie him down, but he looked flat out.

After about a hours anxious wait, Josh was wheeled back into the room still fast asleep. He was awoken by the staff then who took his pulse and blood pressure. He stayed awake then, even though his eyes looked very tired. The nurse came in and said that she would give him valium as before. Within around 5 minutes, he was wide awake, just singing, kicking and playing. We now know that valium doesn’t calm him down!!

His 6 hours lying down have gone quite quickly, although the last hour and a half have been a bit of a struggle keeping him entertained. He is now sat upright on the bed playing with his toys, and thankfully not in any pain. Lets hope he sleeps all night.

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