Comments for Kyle's SMA2 Blog

Comment on Going Good by Farah

Farah — Thu, 26 Nov 2009 20:19:21 +0000

Hello Kyle,
I would love to hear from you about your experience and how you are doing. Our daughter, 14 months was just diagnosed with type 2. I would love to hear from you. Farah.

Comment on Going Good by Kris

Kris — Mon, 12 Oct 2009 16:24:12 +0000

Hi Kyle ,
I am type 3 SMA . I want to go to China .
Would you be willing to talk to me about your experience or give me some directions .
My email : logzgo@gmail.com

Comment on Going Good by Pringle

Pringle — Thu, 20 Aug 2009 17:57:41 +0000

Hi Kyle,
I learned about your blog and visit to China from the Martin family in Wisconsin. Our 20 month daughter has Type 2. Would you be willing to talk to us about your experience? If so, please email me at sapnamistry@yahoo.com. Thanks,
Sapna

Comment on Two weeks and still doing great by Heather Langdon

Heather Langdon — Sun, 16 Aug 2009 04:11:53 +0000

Hi Nathan,

This is amazing! Mrs. Pearson gave me your blog, and I am amazed at how well you are doing. How exciting to do all these things you have not been able to do in so long. I cannot even begin to imagine the excitement you and your family must be feeling. Congratulations!

Mrs. Langdon

Comment on Two weeks and still doing great by Cathy

Cathy — Wed, 12 Aug 2009 19:20:04 +0000

Glad to hear you are seeing improvements. We have been taking my SMA Type 2 daughter to the Dominican for treatments and have had similar results. She has taken up to 14 steps independently with her braces on but still does not have the arm strength to crawl. She can lift her arms over her head and drink a full glass of water without help.
Please update your blog periodically. We need to find the best treatment out there!

Comment on Two weeks and still doing great by shahzad jamil

shahzad jamil — Wed, 29 Jul 2009 03:59:18 +0000

Hi Kyles Parents

Great news for me that stem cell treatment is working. My son is of 7years old and is having SMA2, can you please recommend that stem cell treatment could be beneficial for him. I have discussed this thing with doctors in Australia, but they not really convinced for this treatment . Could you please give exact improvemnt you have observed after stem cell treatment
thank you, God Bless you

shahzad jamil

Comment on Home Sweet Home by Krista (Tony's sister)

Krista (Tony's sister) — Thu, 23 Jul 2009 03:15:01 +0000

Hey Kyle!! Saw you at the Buckle the other day and wanted to say ‘hi’ but you left too quick. Glad you all made it home safe and that things coninue to go well. Say hi to your mom and dad for me!!

Comment on Home Sweet Home by Hilbelink

Hilbelink — Sun, 19 Jul 2009 03:00:47 +0000

I am glad to hear that you made it home safely and were able to go to Cozumel.

Comment on Heading Home by The Hesse Family

The Hesse Family — Mon, 13 Jul 2009 03:10:42 +0000

Hi Kyle,
We’ve been following your blog and are amazed at your enthusiasm and progress. I hope you are enjoying being home and got your Cozumel fix. Best of luck to you – work hard!

Mary, Steve, Jeff & Emily Hesse

Comment on Heading Home by JoAnn

JoAnn — Sun, 12 Jul 2009 17:54:33 +0000

Welcome home everyone. Love to see you, Dinner at Cozumel? Let us know