Archive for July 2nd, 2009

Wednesday, July 1

Our day was great.  Therapy as usual.  Went to Lotte Mart to buy some more groceries.  Said “goodbye” to 2 families that left .  One little girl has ONH like Lawrence and her nystagmus has calmed down a lot.  Nystagmus (his eyes move around a lot uncontrolled).  We exchanged email addresses to keep informed of each other’s progress.    I took the kids to swim.  We’ve heard that exercise is great to stimulate the stem cells.  Lawrence got a slight headache, but did great.  At dinner, he said his eyes itched.  Could be a great sign, as it is an effect that Macie got to the stem cells.  Hoping and praying daily.

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