Archive for August, 2009
Hi! It’s me Lawrence. My week has been good and we had our first football game of the year this past Friday. I was able to march out a short distance without holding on to anyone to stay in line. The other thing that really stood out was the movement of the cheerleaders as they ran by. I was able to see that they were running by. It felt like I was in an IMAX theater. The other thing is flashes of color and motion that have never stood out before are now standing out. One more thing, I was able to see the trashbag liner as I reached out to take it from my mom. This is really exciting. Professor Oey was able to get us a converter for electric wave therapy. I got my first 30 minutes in my own home yesterday. It felt good getting back into therapy. I will update next week.
August 31st, 2009
Hi! Sorry we haven’t updated lately. I am back at work and Lawrence has been busy with band. We finally have gotten our routine back and have been enjoying our time at home. We really miss China, all of our friends, the staff at the hospital, and the simplicity of our 40 day life in China.
Lawrence is doing great. He has really been seeing improvements almost daily. Some of the things he has really noticed is the movement of cars. His friend Greg picks him up for band practice and one of the first times he did, Lawrence was moving back as Greg was driving up the driveway. He thought the car was going to hit him — it felt like that for him. Amazing, what these stem cells can do.
We have finally found a converter for the electric wave therapy machine. Dr. Oey is from China and has a converter that he will bringing to our home tomorrow. We are excited to get this therapy started again.
Some of the other improvements are being able to pick up objects on the floor precisely without feeling around. Facial features are becoming slightly clearer. Shadows at night are leaping out. Those are some of the bigger changes he is experiencing. We will try and update weekly, with any new improvements. Thanks for reading!
August 23rd, 2009
It’s us and we are glad to be home. Sorry for not blogging, but we have been trying to adjust to the time change. We got into El Paso at 4:30 p.m. and were greeted by our friends and family. It was great. We went straight to eat Mexican food — we missed it so much. Our friends and family had groceries and made food for us. They are absolutely awesome! It took us about 3 nights to get adjusted to sleeping at night.
Lawrence is doing great. He started back at band on Monday 8-4, so he was pretty tired the first day. He loves music, so it has not been a sacrifice at all. His friends were very happy to see him and one noticed that his nystagmus was much less. He told him that his eyes hardly moved anymore. He also saw his band director’s yellow t-shirt from short distance at the airport. These were immediate things that happened.
As the week has gone on, he is noticing different things here and there. I have been continuing to test him with the letters on paper and computer screen. He can see much better on my laptop at home, which does not have any glare. He noticed the difference immediately. The letters are 450 font. The letters on the paper are about 7 inches from his face. Today, I showed him the 6 blue circles I had tested him with in China and he could tell me that they were blue circles. This is soooooo awesome.
Emani and I are so happy for him and he is so happy for his “sight”. I will update as new things come up. Again, thanks for everyone’s prayers-prayer is very powerful.
Just a little note, we miss all the families we met in China and all the wonderful staff at the hospital.
August 7th, 2009
