Archive for September 18th, 2007
Day 7 & 8 - Sept. 9th & 10th
We have another free day and Alex wants to get outside. We go for a walk and end up walking for 45 mins. At home he can only walk for 30 min. - anymore and he is falling down soI guess he felt so great that he could walk so well we just kept on. It was a very hot day -probably 87 or 88.
On the 10th Alex goes to therapy and he is right back where he started - some things were worse and some were better. In the afternoon we walked down to the market and back and I felt that was even to much for him. He seemed a little wobbly.
Another good thing happened - Alex told the therapist how his head feels - like someone has hit him over the head with a hammer and he feels all foggy. Also when he turns is head to the side he has to squint one eye and he sees double. She told the acupunturist and he checked him out and then put a lot of needles in his forhead and around his head. The most amazing thing happened - while eating supper he turned to look out the window and he didn’t have to squint and he didn’t see double. It was an amazing break through. I sure hope it lasts.
September 18th, 2007
Day 6 - Sept. 8
Alex’s walking is a lot better. The Dr. thought his speach should be better then it was - apparently that is the sign of improvement. Today is our free da no exercises so we are taking it easy.
September 18th, 2007
Day 5 - Sept. 7th
Alex spent most of the day doing his acupuncture, physio and electric wave therapy.
We had a lot of excitement as ABC was here filming a man named Paul who lives in Colorado. He also has ataxia so we will be looking forward to seeing this interview on TV. They were not sure of when it would be aired. Jon from Beike was also here for the taping and I had a long conversation with him about stem cells. He told me Alex should see a lot of improvement after he has his injections. Alex also spent a long time talking to the Dr. that is in charge of the stem cell program.
Alex was wheeled into the stem cell room at 4:40 p.m. and came back out at 5:50. He said it was a piece of cake and felt really good. He had no problem laying still for 6 hours without a pillow. He is a very good patient. Whatever they gave him made him doze on and off for the next 6 hrs. It was harder on me watching him for the first time to make sure he did not lift his head up.
September 18th, 2007
Today Alex had an xray of his spine - I guess that is so they can see where to put the stem cells. We walked to the market in the morning and had a good look around.
In the afternoon Alex had is procedures and he told the acupunturist about how foggy his head feels and that when he turns his head to the side he has double vision. When we were having supper he notice he could turn his head to the side and his double vision was gone. In Canada we were told there was nothing you can do for this disease - no medicine - no surgery - just go home and come back in 6 months.
September 18th, 2007
Today he had acupuncture, physio, and electric wave - so that pretty well takes up the day. We also walked down to the market to get some food.
September 18th, 2007
As soon as we were up the came to do tests - blood, urine, blood pressure, temperature etc. Then Jerry came and took us for a tour of our floor and the 20th fl where they have all the treatment rooms and everything for the physio therapy.
Dr. Ma and several orther drs. and nurses come in to evaluate Alex while Jerry takes me on a tour of what is close by and then we go shopping in the market and then back to the hospital. While I was gone Alex went to Physical therapy to be evaluated. Now he has a schedule for the rest of the week.
In the afternoon Alex went to Physio and a young fellow named Alf made a video of Alexs’ walking etc. then he had Electric Wave Therapy.
Everyone here is so nice and friendly and very helpful - we are very impressed with everything so far.
September 18th, 2007
Day 1 - Sept. 2, 2007
We are on our way to Hangzhou, China to receive Stem Cell Therapy for my husbands Ataxia - After 5 years he was finally diagnosed with having Spinocerebalar ataxia. After 15 hrs and 30 mins of flying we arrive at 7:40 p.m. on Oct. 3rd. Jerry a volunteer and her driving are waiting for us at the airport and drive us to the hospital where they take us to our room on the 18th flr. I unpack and fall into bed for a good nights sleep.
September 18th, 2007
