still getting fevers
September 4th, 2007
i have to tell you that it has been 2 months since i checked out of tiantan puhua hospital in beijing and you know what? i am still getting fevers!!!
i have written my junior doctor, doctor xi, at tiantan puhua about my fevers and i requested that she ask the directors also about why i am getting these fevers. she told me that the directors at first were saying that maybe it was due to the medicine i have to take to keep my SLE under control. i also asked her if they’ve had other patients who have had consistent fevers after they checked out, and dr. xi told me that no, there’s been no one else who’s had consistent fevers like i have.
luckily in england, the british people travel quite a lot, and they have hospitals for tropical diseases which is where my GP sent me after i saw her a couple of times. she had no clue why i keep getting the fevers, so she sent me to the hospital for tropical diseases which is over by my main hospital, UCL (university college of london, i believe it stands for).
i’ve been to the hospital for tropical diseases 3 times so far. 
i went in today to give more blood. i went in last friday also and saw a different doctor who suggested i get blood cultures done. i have to go in 3 different days to get my blood pulled from 3 different places for the results to be 90% accurate. i have one more day to go in, tomorrow, and then i have another appointment on thursday. we’ll see what they say. so that’s my news thus far….
i still continue to do my tongue exercises so my tongue continues to improve. i still do my exercises left and right and up and down with my tongue twice a day, sometimes more. i still have to work more on my balance. since i don’t make it to the paracourse often where they have the balance beams, i haven’t been working on my balance as much. it’s unfortunate that the hospital didn’t give me any exercises to help work my balance. they were disorganized when i checked out. sigh.
******** p.s. this is also posted on my yahoo 360 blog: http://uk.360.yahoo.com/mbinim
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1 Comment Add your own
1. TERRY JACKSON | January 2nd, 2008 at 1:37 pm
please forgive my ignorance,but what was the onset and nature of your brain stem problems? april 29,2007 i had a brain stem hemorrhage from a congenitallydefective vessell in the pons. in hospitals 3 months and now at home,would like to follow your progress and like your blog.
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