1st Update
September 15th, 2007
Hello everyone,
It’s been three months since I’ve been home. I continue to improve. I have more stamina as time goes on. I am trying to be as healthy and active as I can. I try (mostly succeed) to eat healthy and exercise - don’t drink or smoke. I also have acupuncture regularly. These three things do absolutely keep me feeling good and on the right track. It’s just a matter of keeping them up — which is difficult — I don’t know why, but, I guess life gets in the way. I want these stem cells to keep on multiplying.
For those of you who are considering going to China for this treatment — I urge you to GO FOR IT! I got my life back. I was a shell of the former person that was me — now I feel like I did a long time ago. It’s hard to explain unless you’ve gone through it - but it was a life changing experience for me and I would do it again in a heartbeat.
Betty
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9 Comments Add your own
1. Jody Hollister | October 31st, 2007 at 12:46 pm
Hello Betty, My Mum and I spent time with you in Nanshan in June this year, My name is Jody i am from Aussie land and my Mum is Hazel she has mnd. I am sooooo glad to hear of your progress keep on getting better. Mum and i are returning to China Hangzhou in Dec for more stem cells, I wish i could say Mum had as much sucsess as you but that is not the case, only slight improvements. So we are going to try again. Drew is also going back 1st nov. We are blogging again so check out Mums progress and maybe send us a line some time in Dec. Best wishes to you and Veronica.
Jody
2. Christine Gray | November 1st, 2007 at 1:43 am
Hi Betty,
Great news! I’m glad you’re doing so well. I have spinocerebellar ataxia (Christine’s Ataxia Blog) and returned from Nanshan Hospital last January. Like you, the treatment I received changed my life. Not only have the stem cells brought about positive physical changes , but my time in China was so positive that I have a rejuvinated “attitude”, a new lease on life. I’ve passed on your blog & patient experience info to a few local people I know ( I live in Vancouver, Canada) who have M.S. and who are at their wits end. Your journey is an inspiration. Best wishes for the future & thanks!
Christine Gray
3. Richard Humphries | November 21st, 2007 at 2:29 am
Hey Betty,
I tried an earlier e-mail but I am not sure it went thru.
My name is Richard Humphries and I have been diagnosed with MS 25 months now. Truly is it is great to see you are doing better. What about the future white blood cells continueing to fight themselves thus some of our fatique issues?
What was your daily hours of sleep before and after.
Any spasticity problems?
Any tonic seizures?
Will I get better with more crawfish etouffee? When you now live in Ft. Worth after being Louisiana bread the best etouffee comes from our kitchen.
Thanks,
Richard
4. ursula shbib | February 21st, 2008 at 12:06 am
i am another ms sufferer and i was wondering if you could update your progress report. thanks for your time.
ursula
5. Kevin Jones | February 26th, 2008 at 8:57 am
Hi Betty,
Wow! What a great experience in china! I am considering the treatment as well. I have Primary Progressive MS for 12 years. Things are deteriorating faster now. I have been reading your blog and wondering what kind of money is involved in going to get this treatment?
Kevin Jones
thejones@pei.sympatico.ca
6. Nancy Sim | March 18th, 2008 at 5:44 am
Hello - My name Is Nancy - I was told I have MS 2-1//2 years ago - I was treated for relapsing MS for 2 years before I was told its not relapsing it is primary progressive - can you tell me what you have and your experience with the therepy
Thanks
7. Lori English | March 26th, 2008 at 1:55 am
My sister-in-law has very advanced MS she is going to China the 21st of May. She is in a wheelchair now but we are hoping this will help. I guess my question to you is are you continuing to improve and have you heard of anyone that has had the treatment and able to walk after being confined to a wheelchair.
8. Val Rechenmacher | March 30th, 2008 at 4:16 am
I found this M.S. Blog site after reading about the Stem Cell Story Online, in a local paper. I was diagnosed with MS last summer - 8 mos ago. A friend saw me struggling with walking, and brought some info over about glyconutrients. After taking the suppllements for 4 months, I returned my cane to my physio therapist. As a added bonus , my variciose viens are clearing up.
Amazing how this breakthrough , scientific product is helping me. Contact me if you would like some info on it.
9. Richard S | April 11th, 2008 at 11:39 am
4-10-08
Hi Betty…
I have read your comments on the China trip and the stem cell treatment. My wife and I wish
you continued improvement. My wife has had MS for over 20 years and is currently on Tysabri.
We do have questions to ask and certainly appreciate any response and your time.
But here goes.
Your last comment was in September of last year. How are you doing now? Are you continuing
to improve or are you stable or are you relapsing?
Were you on one of the ABCs or Tysabri before you went; and if so, did you stay on one of those
while you were there; and if so, are you continuing with one of those since you’ve been back?
How old are you? How long have you had MS? What form do you have? Relapsing remitting?
Secondary relapsing remitting? My wife is in the secondary stage because of the number of years
she’s had MS.
Any bad side effects from the treatments?
How many stem cell treatments did you have during your stay in China?
My wife has no ability to walk without either holding on to myself or using the four wheel cart
we have. She would not be able to keep her balance while using only a cane. Her feet are always
numb and the lower half of her legs. No vision problems as such although she did have optic
neuritis when MS first hit.
Have you had any MRIs since you’ve been back? If so, have the MRIs shown any lessening of
brain plaks (sp?) ?
Richard and Donna
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