July 25th, 2008
Well we haven’t been out of the hospital for 2 days and to tell you the truth the days are running together and I am not sure what day it is or what I did yesterday. It is raining and the weather is gloomy. Things in the hospital have not been much better. After all of the kids getting sick on Monday, we think because of poor hydration, a couple still have headaches. The little eight year old boy Glen had his first spinal injection yesterday and woke up this morning with a headache that just kept getting worse until finally he was screaming in pain. I felt so bad for his poor mother who whenever would just touch Glen he would scream uncontrollably. You will have to read about it on his blog. It was terrible and they are going home. I now see what people meant when they said “wait until the treatment comes to America and they have worked out all the kinks.” The only problem is it may take years to come to the states and many people believe that as you get older the part of your brain that recognizes vision will fully developed and any new vision gained could not be processed. So for many of us parents we feel like we have not option to wait so many years. I do believe that the stem cells are working but the hospitals here are not like the ones at home and all of the parents are finding inconsistencies in the way they are doing things.
Besides from Bradley feeling bad and vomiting after his treatment the other day, he has made out fine. As of right now I can say in the future we will be waiting for this to come to the states and will not be coming back to China unless we see major major results. Which I am still hoping and praying for. But I need to have patience because I know it will take awhile to see what the true outcome will be.
I do not want anyone to worry at home. I still feel o.k. about everything or I would definately pack up and come right home. I just want other parents who are reading the blogs to be more prepared than I was about what to expect. Pray for us and all the families here and I will try to be more positive next time.
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11 Comments Add your own
1. Aunt Elaine | July 25th, 2008 at 4:29 am
Amy, you sound pretty calm to me, considering what Glen went through. I did read his blog. It was terrifying.
I also read Macie’s blog and was excited to learn that she could read more on the eye chart. That is great!
I feel like you had to give this treatment a chance. I don’t see that you had a choice. Like you said you still don’t know what the outcome will be. Whatever it is, you guys are pioneers in the field of stem cell treatments. The treatments Bradley, Macie, and the others have endured will pave the way for more improved treatments in the future.
You guys are my heros!
2. John A. Tullous | July 25th, 2008 at 5:14 am
Ni Hao Gang,
You know life comes at you fast and it is not always pleasant. But you know what they say. When life gives you lemons make Lemonade. I really believe you are doing this and not completely consious of how things are going. Emotions trip you up and compassionion for others can be a little trying at times. But your doing it. Your all doing it together. That’s what is important. We here on the home front are so so proud of you guys. I pray that the Lord sees your plight and knows your heart, this way the healing will be good and complete. Hang in there for a few more days. Your almost to the finish line I mean look at it this way. A week from tuesday you’ll be home. That’s not far at all. Even in the States some Medical procedures don’t go the way they ae planned. You see them on the news constantly. Don’t worry- Harry Potter is tough . Focus on the good things and trust in God. That’s where everything lies on our journeys through life. Just don’t forget who’s looking after you.
I can’t wait till you guys get back
Cheryl, thanks for what your doing- the unsung heros need a little shot in the arm too. Amy and you need to yank a knot in those people if they get out of line. he he Well maybe better if your nice to them- seems to be an endless supply of them around.
I will be attending continuing education classes for the next two days. but I’ll try to keep up with the Blog
Love ya All and God Bless and Keep you-
Grandpa and Grandma Yvonne
3. Donna Jones | July 25th, 2008 at 9:12 am
Hi Lady,
I know that you are tired and feeling a little down.but like Aunt Elaine said you guys are our heros. You are in every sense of the word a “very Special Mom.” No one could have worked harder than you have to help their child.
I remember when you and Todd were first married, and we were talking and I told you that I believed that you could tell the worth of a woman by the way she cared for her family.
You and Todd have always put your children before yourselfs. You have always wanted the best for them and if that meant searching endlessly to find a cure for your son that is what you have done. If that meant going to the other side of the world to meet his needs that is what you have done. If that meant working tirelessly to raise the money to get him there, that is what you have done. If it meant being away from the comforts of home and your family and freinds that is what you have done. Who would believe a little girl from Chincoteague Island could accomplish so much for her family!
One thing that I am learning the older I get is that we are to be a workman but God is in charge of the results! He never makes a mistake. Everything is for our good and His glory.
I love you all very much and I am so proud of you.
Love Aunt Donnal.
4. Kristie Annis | July 25th, 2008 at 7:30 pm
Amy,
I have been reading your blogs and find everything so interesting. Wow! You guys are so brave. I can’t wait to talk with you about your adventure in person! We are praying for you all daily. Won’t be long and you will be back on the beach! Hang in there!
Kristie
5. Rhonda Matthews | July 25th, 2008 at 8:57 pm
Amy,
Hang in there! Your doing great! I feel so sorry for Glenn. Did they tell you about side effects? Was bad headaches one of them?
Taking Todd and Kaleb to see Tony Hawk tomorrow!! We are so excited! They are going to have so much fun!
Miss you and love you!
Rhonda
6. the Winums | July 25th, 2008 at 10:37 pm
Hi Amy & Bradley & Cheryl,
I’m so sorry that things have been so hard. That’s awful about the headaches/sickness, etc. That must be so difficult for you. We are praying for you, and for the other families there with you! Hang in there……what you guys are doing is really awesome. Even if it’s just a little improvement, it’s great….but we will all be praying for big changes over the next 6 months. God is in control.
love, Kara
7. Aunt Pat | July 25th, 2008 at 11:31 pm
I’m BACK… after a week on the Eastern Shore, and let me tell you it wasn’t the same without you! But Bradley, I did sleep over at your house a couple of nights, in your bed- not bad! It was great to visit with the family, enjoy the early arrival of Santa Claus Jr. and Miss Claus, aka Griffin and Shannon (Caleb and Olivia’s guardian angels), and Skype with you a bit, but I did miss checking out your Blog and getting all the nitty-gritty information.
A good night’s sleep is usually a blessing and I am grateful because last night after catching up on emails and reading what I had missed on your Blog, I was a little discouraged. I decided to sleep on it, and this morning I feel more positive!
Your grandpa T. made a good point; in spite of all our good efforts in the USA, medical mistakes are made every day here in this great country of ours. I was sorry to hear about the little-one whose first treatment was that unfortunate one, but sometimes bad things happen for a good reason and maybe his family should wait; treatments can only improve. I’m just glad that it wasn’t your first treatment, Bradley, and that soon you’ll be on this side of the Pacific, watching and waiting to see the more positive effects of your treatments.
I’m really excited and heartened to read that Macie can see measurable improvement already! Send pictures of Macie in her new dress!
Thanks Amy for your honesty! You have a certain responsibility to others to ‘tell it like it is†and you are doing it with such grace!
Cheryl, we thank you for being there and lending support!
We can’t wait to see you! Uncle John and I want you to know that if you get to yearning for things Chinese after you return, you can always come to DC for a visit! We’ll take you to H-Mart where John buys his seafood and I buy my nuts. They don’t sell frog, but the aroma is interesting, and you can always find an Oriental treasure that you can’t live without! We could even take Metro into Chinatown!
Sending e-hugs, love, and prayers,
Aunt Pat
8. Angie Umphlett | July 26th, 2008 at 1:49 am
I feel bad for the parents who have to watch their kids in pain. Hang in there. Its almost over. The blog is interesting to read for us all. Were still praying. Talk to you soon. Angie U.
9. Lois Daisey | July 26th, 2008 at 9:43 am
Dear Bradley & Amy,
I cant wait for you to get home so we can begin working on getting the treadment started on a bit scale here in the USA.
Bradley you are such an encouragement to others, God is using you to show others what God can do when you trust Him.
When you get home we will get the tape of Pony Tails Pony Penning put on DVD’s. You can send them to the friends you made in China.
I have written the verse you asked me to for Bradleys Song.
Cheryl, thank you for being there with Bradley & Amy. I know it Is not eash to leave a business & family but you made the sacrifice.
I am praying constantly for God’s perfect will.
Love,
Grany
10. judy mcmichael | July 26th, 2008 at 9:50 am
Amy, Cheryl and Bradley,
I look forward to reading the blog daily and just know and feel y’all have done the right thing. Patience is so hard to have when it involves our children (no matter how old they are – right, Cheryl?) but know that there are so many keeping you in their prayers tjat amswers will come.
The friends you have made Bradley will be life-long friends and what a blessing that is!!
Cheryl, I’m so glad you are there with Amy and Bradley and know Todd is proud and thankful you choose to make the trip.
Stay steady all of you.
Judy
11. Kelley | July 26th, 2008 at 10:15 am
Hi Amy & Bradley,
I hope Bradley & the other kids are having a better day today. I know it is very hard to watch your children in pain. I have been praying for all of the kids there, the ones I know the names of and the ones I do not. I am so happy for Macie, and thankful for her friendship to Bradley. I cannot wait to see you & Bradley soon! I miss you both very much and think and pray for you guys often! Know that I think you have both been very brave and strong! I know God will hear our prayers and heal these beutiful children in His perfect time.
Love you & miss you,
Kelley
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