Hello everybody,
Today is a good day Chandler has been doing so great. I feel he is making such improvements, there a little ones but yet they just mean the world. Today chandler was in therapy n they put blocks in front of him n she was hitting them together saying boom. All of a sudden we put Chandlers hands on the block n showed him to hit them together we sat there for a little bit, and sure enough after alittle time he hit them together I have never seen him do that before it was so exciting. I am so proud of him. His older brother Tyson is getting really good with him it is so good to see that.
Talk to everybody later
Love Chandler and Kristin(mother)
April 4th, 2009
Hi i am so sorry i have not wrote sooner. It has been so busy since we have been home. Chandler has been sick alot with all the sicknesses going around and he was getting all of his back molar teeth in. I was getting really scared for a while there, cause Chan was sick all the time his seizure activity got ungodly, and he wasn’t eating and all of his teeth were coming through. But now Chandler has done like a complete uturn, I am very happy with the stem cell results so far. We just got a computer otherwise we haven’t had computer access so now we will be able to keep in contact with everybody.
Talk later, chandler and Kristin
March 26th, 2009
Hello Everybody,
Sorry I have not wrote sooner since we have been home it has been busy alot of catching up to do!! The trip home was very well we had alittle problems in LA with a delay and problems with the plane, but we made it home safely it felt so good to get home and see my BIG BROTHER!! Since we have been home Chans physical therapist was very amazed with Chandlers muscle tone, he says he sees that his eyes are focusing better and was very pleased with how Chan was grabbing toys. I am already excited with all the results we have had from the stem cell treatments, and am excited to see what the future brings for Chandler. Chandler has been so a strong and brave little boy and we are all so proud of him! Everybody at the Hospital was very nice and we are very greatful to them, and hope to see them all in the future. If we are able to come up with more money we will definately bring Chan back for treatments in the future.
Talk to Everybody Later, Thank you for you support!
January 8th, 2009
Hello Everybody, Chandler recieved his 6th injection on friday the 26th. He has been doing so good he is sooo strong I am so proud of him. So we are 5 hours away from leaving the hospital and then we will be on our way home, EXCITING!! We miss our Daddy ,brother , and our whole family back home cant wait to see them!! I feel this trip was well worth it, I can not wait to see what the future holds for Chandler. The Doctors, nurses, and the staff have been just great with Chandler, and I am very appreciate to them for that. If we were ever to come with with enough money would would definately take this trip again.
Talk to everybody later, Love Chandler and Kristin(mother)
December 28th, 2008
Hello everybody, Chandler is doing very good after his 5th injection. He will be getting his 6th injection on Friday, the 26th. We are very sad that we are not going to be home for Christmas, but the hospital here is throwing a Christmas Party for us on the 24th so that is exciting, but there is still no place like home for Christmas!! I will keep everybody informed on how Chan is doing. Thank you very much.
Love Chandler and Kristin(mother)
December 23rd, 2008
Hello everybody, Sorry I have not wrote sooner I have been having alot of problems with the internet. Chandler is doing very well. He had his 4th injection on Dec.15th all was good, up until Thursday night when he started with a fever and was gradually getting worse, they then took blood and found out that Chan was getting a bacterial infection. His 5th injection that was suppose ti be on that Friday was then cancelled and move to today. It has been 4hours since Chan has recieved his spinal and he is doing great. I have notice change with Chandler with his eyes, his strength, and his head control. The other day as I was pulling him forward his head usually lays back, but it proceded to move forward as i was pulling him up , that brought tears to my eyes it was beautiful!!
Talk to everybody later!
Love Chandler and Kristin(mother)
December 22nd, 2008
Hello Everybody,
It is sunday Dec. 14th. and Chandler is doing absoulutely fabulous. He has his fourth injection tomorrow, which is Monday, so excited 13 days to go!! It is so hard being away from home, especially when Chan’s older brother, Tyson, who is 3 years old we miss him sooo much!! So there are so many nice families here everybody is easy to get along with, and it is nice to talk to everybody with different stories and they know exactly what you are going through. We have become pretty close with a couple families one from Kentucky we go everywhere with them. They are here for there son. There is another family here from Chicago, and we get along very well with them. They will be leaving on the 20th, it wil be so sad to see them leave, because we have come to know one another so well!! We will keep eachother informed with what is going on and how everything is going with one another. Ok well i will talk to everybody later and keep you informed on how Chandler is doing..
December 14th, 2008
Hi everybody so today has been a good day, i got my third spinal injection and so far it has gone really good it is Dec. 10th. I received my injection at 2 pm it went very well. I will know more tomorrow on how I feel. On Dec 9th I went to West Lake to get out and do something because it was beautiful here in China it was 70 degrees. Hangzhou, China is known for its beauty and tourists attractions. Yesterday was a very good day and I was happy Chandler got to go out and experience it. So I will be receiving my 4th injection on Monday. Hope all goes well, talk to you later.
Sincerely, Chandler and kristin(chans mother)
December 10th, 2008
So today is Dec.8th. everything is going well, i had kinda of along weekend, after my spinal injection i was very sore, and ran a low grade fever through sat. and sunday i was back to normal. I feel Chandlers eyes are moving very well together. Chan’s left eye is usually the lazy and very weak eye, and they felt he could not see me and maybe it was blurry and it his hard for chandler to look at more then one color at once. I feel like chandler is using both his eyes very well now. Today he has only had 1 seizure so far and that is fewer than what he usually has so that is awesome. I feel like he is more aware of his surrounding and is able to give so much more emotion. So Chandlers schedule for this week is he will have a spinal injection on Wed. the 10th. He has physical and standing therapy everyday which is very helpful to Chandler. He also has electrical wave therapy everyday except injection day which is helpful. We are very grateful to the Doctors and all the staff here at the Beike stem cell program for giving us such a hopeful road ahead of us!! Talk to you soon after next injection.
December 8th, 2008
Hello everybody today I recieved my second ijection it was the first time I have received it in the spine. It has so far been good i have to lay flat for 6 hours after I recieve the injection, but it wasnt as bad as I thought is was gonna be. Everything else is going very good here in China. I feel so blessed for Chandler to be here and to be able to get these stem cell treatments, we are very appreciative of Hangzhou hospital and staff. I have not had any problems so far, I will keep everybody informed on my journey through the stemcell treatments, and watch and see what the future has to bring.
December 5th, 2008
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