2 YEARS ON - IT’S HARD TO BELIEVE

June 24th, 2008

It is now two years since Chris and I traveled to China for stem cell treatment.  It’s hard to believe that time has gone so quickly.

But I am pleased to say that I am feeling fabulously fit and well – full of energy and very much in control of my life.  The lasting benefits of improved bladder control and sleeping at night are still with me.  The levels of pain in my feet and legs are dramatically less.  I must admit that I am amazed that these improvements have lasted – and in fact I seem to be feeling better all the time. 

Just two weeks ago I competed in the MS 24 hr Mega Swim to raise money for Multiple Sclerosis.  I swam two ½ sessions, completing 1km during each session.  Since the treatment in 2006, physically I have remained very stable while emotionally I seem to be improving in great leaps and bounds.  I need to mention that for the past 12 months I’ve been taking LDN as well as vitamins.

I am still use my wheelchair to get around.  The stem cells didn’t miraculously enable me to stand up and walk……… but even before the treatment I didn’t expect that would happen.  I have been off my legs for 15 years so it would have been a big ask.  But since the treatment I am far more active, energetic and extremely happy and content.

So in September this year I have made arrangements to go back to Qingdao, China for another course of stem cell treatment.  It will be interesting to see what other improvements I get, or whether it will just boost the current improvements, or whether nothing at all will change.  We’ll just have to wait and see.  I am really looking forward to meeting up with all the friends we made there in 2006.

So watch this space in September to see what happens.

Entry Filed under: Uncategorized

3 Comments Add your own

  • 1. Bev Hollis  |  June 26th, 2008 at 10:09 am

    SOUNDS LIKE YOU ARE DOING WELL. IF I WERE TO DO IT WOULD LIKE LEGS AND BALANCE AND BODY PAIN TO BE IMPROVED.

    HOW OLD ARE YOU AND HOW LONG HAVE YOU HAD MS?

  • 2. Sharon  |  July 20th, 2008 at 10:21 am

    Dear Jackie and Chris,

    My name is Sharon, my Dad is very ill with a rare brain disease. We have been reading and corresponding with Beike and various people and their blogs. Lily and Richard who have quite a comprehensive blog pointed us toward you. Mum, Dad and I have a few questions regarding China and we are very close to making the decision to go to China, so we may even meet you one day. I live in Brisbane and Mum and Dad live in Melbourne, although they are visiting up here at the moment to avoid the Melbourne winter. I am wondering if you wouldn’t mind have a quick chat to us about your experiences and the considerations you are making prior to this trip. I am happy to call you if you let us know a suitable time. I can’t tell you how much it would mean, particularly to Mum to have a conversation to an Aussie that has experienced China. I hope you can help us. You have my email and I will email you my numbers in reply, but as I say I am more than happy to call you anytime that suits. In appreciation, Sharon.

  • 3. Thomas D. Taylor  |  August 9th, 2008 at 5:20 am

    You might be interested in listening to the comments of a man with Multiple Sclerosis talk about autism, Asperger Syndrome, and Multiple Sclerosis and the similar problems encountered by people with these diagnoses.

    While the podcast entitled “Special Feature Interview with Douglas Giesel and An Update Interview with Lewis Schofield” is mostly autism-based, Douglas does comment on his MS at length. His words are very inspirational.

    Midnight In Chicago puts out these free audio podcasts, and they can be listened to at http://www.mic.mypodcast.com

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