JC’s MJD Blog

home sweet home

June 8th, 2007

I am sorry it has taken me so long to let you all know how JC is doing. I initially was waiting for the doctor’s report while we were in China. It talks about what improvements they had found but the report was late and we didn’t get it until we were home. Once we were home I had NO time to go on the computer. We are so glad to be home and love every minute with the kids. The difference in JC is amazing and unbelievable. The doctor’s scored him 40/56 on the neurological tests when they first saw him and at the last day he scored 50/56 with improvements on all tests. My tests walking with water, bending down tying his shoes, bending down to pick something up, foot to heel walk, standing closing eyes, etc. Most of these simple tasks were impossible, all were very difficult before the treatments but not now. He has no trouble doing these things now.

We watched the improvements and progress over the 35 days we were in China and it is miracle to us. JC’s goal when we first got to the hospital was to be able to not use his cane as much. After the first injection that goal was reached so he aimed for the stars (I thought that he should not aim this high but I was wrong). His new goal was to be able to run on the treadmill. His physio doctor knew that this is what he wanted and worked him up to it over the month of physio. JC could not coordinate his body even enough to make the motion of jogging before China, even though he once was a great runner and top of his physical training classes in the military for many years before this disease. After the 3rd injection he could get the rhythum of a jog going and would jog through the halls of the stem cell ward. The last week of physio he ran on the treadmill and everyone was clapping and it was like I was dreaming.

JC made this all possible with his positive attitude and lots and lots of hard workouts in physio and those wonderful little miracle stem cells. It has been almost 2 weeks since we arrived home and he has even improved over the last couple of weeks. He has sooooooooooo much energy and feels wonderful. He looks healthier and has gained weight. People are shocked when they see him now.

Everyone has been so wonderful with our family, from the start of all this. We thank you all for getting JC better. I am going to keep monthly updates.

For all of you planning on going to China, our prayers are with you.

It was an adventure of a lifetime and a gift that gave JC his life back.

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