Jordan’s Glucose Transporter Deficiency Blog

35 Comments Add your own

• 1. Jordans Dad  |  March 24th, 2008 at 10:20 am

  3 days and counting everyone Jordan and Sabrinas adventure is about to begin. This is Jordans web site blog. Stay tuned for up-dates.

• 2. Vicki and Brooke  |  March 25th, 2008 at 4:43 am

  Hi Sabrina, Jordan, and Family: Our prayers are with you as you journey to China. We pray for your safety and improvements for Jordan. We think of you often and look forward to meeting in person over the summer.
  Our best wishes,
  Vicki and Brooke Barels, GLUT-1 family, Wisconsin

• 3. Robert Pivonka  |  March 25th, 2008 at 10:10 am

  Hey Jordan Trying to see if this Blog works

• 4. Kelly  |  March 26th, 2008 at 2:34 am

  Hi, I hope all is going well.

• 5. Sophia Clemmons  |  March 26th, 2008 at 7:09 am

  Hope you have a safe trip to China. Everybody is praying for your success and safe return home. Good luck and believe in miracles…they do come true!!!

• 6. Susie  |  March 26th, 2008 at 8:14 pm

  Hi,
  I hope that you have had a good trip. Get some sleep tonight if possible. We ladies at Bible study on Wed. morning prayed for you. I will mention you at church tonight.
  I pray that all is successful and you make a lot of new friends.

• 7. Anita Barrett  |  March 27th, 2008 at 12:03 am

  Good luck!!! Love you both!
  Anita

• 8. Richard Jordans dad  |  March 28th, 2008 at 2:14 am

  Jordan and Sabrina left Huntsville yesterday at 12:53 pm, They left LA. at 1:55 am so far the flight has went fine. Jordan was smiling when she left while everyone else was in tears, Thanks Mike Nix for the prayer.

• 9. Richard  |  March 28th, 2008 at 2:30 am

  Just a note Sabrina and Jordan left Huntsville yesterday at 12:53 pm and then they departed La. at 1:45am this Morning. Jordan was all smiles while the rest of us were in tears. Thanks Mike Nix for the prayers. I will let everyone know when they land.

• 10. Brenda Stover  |  March 28th, 2008 at 6:43 am

  You two have been our thoughts and prayers all day. Hope things have gone well for you and that you have safely arrived at your destination.

• 11. admin  |  March 28th, 2008 at 9:21 am

  Hello, Jordan, Welcome!!

• 12. Sabrina (Jordan's mom)  |  March 28th, 2008 at 3:42 pm

  Hey everyone!! We’re here!! One more take off and I would have come back home. Jordan slept better on the flight over than I did and has been an excellent traveller. I want to thank everyone again for the prayers that have been offered on our behalf and ask that they do not stop now. China is a beautiful place and is very clean, our hotel is amazing and we have a wonderful view of the city. The city has around 5 million people and is considered “small”–they would love Decatur/Trinity! One funny–I asked a lady what time it was and she replied 14:11 and I thought she said 40:11 and mouth here said “forty eleven” she said no eleven minutes after 14 o’clock. She thought it was a good laugh also. Mine and Jordan’s lunch bill was 126 RMB which translates into $21 approximately but I cannot get used to 100’s in paying a bill. Well enough of this I am going to go give Jordan a hot bath and then I am taking a HOT shower and we are going to bed and watch tv and try to stay awake until after the sun goes down. I hope everyone is well and I will try to “blog” daily.

  Love to all,

  Sabrina and Jordan

• 13. Richard  |  March 28th, 2008 at 8:08 pm

  Sabrina and Jordan arrived in China at 9pm our time on the 27th. They are fine, have a nice hotel and get stared at by everyone.

• 14. Katrina Smith  |  March 29th, 2008 at 12:07 am

  I am thinking and praying for you both while you are in China. I hope you know how much you are missed here in Decatur. I will be keeping a check on your progress.

• 15. Carolyn  |  March 29th, 2008 at 8:43 am

  Hi Jordan & Sabrina, Hope you’re getting to see some sights before you get down to business! Your entire family is on my mind and in my heart. Richard, have you served Spam to Taelor yet??? We will have to meet you two for dinner one night and get you some real food! Love to you all!

• 16. Linda  |  March 29th, 2008 at 7:35 pm

  Hi, Jordan! Hi, Sabrina!
  It was good to hear you made the trip safely.
  I’ll bet you were two weary travelers. That was a really
  long airplane ride, wasn’t it, Jordan? Now you know China is a long ways away. This is a once in a lifetime opportunity, so enjoy it as much as possible and see a few sights if you can. Everyone is “watching” and following your journey. Our hearts and prayers are with you both. Uncle Norlee says hi, too.
  Take pictures! Love you both……..xo

• 17. David  |  March 30th, 2008 at 11:34 am

  Richard, glad the flight went well and everyone arrived safely. This is such an exciting and yet challenging time for everyone. I hope and pray that everything is successful. Whatever you need, just let me know.

  Dave

• 18. Richard  |  March 31st, 2008 at 7:03 pm

  Jordan met her Dr’s today they were positive in there outcome of Jordans treatment, she will have her first accupuncture treatment tomorrow. and stemcell Wednesday afternoon. Physical therpy will be done everyday.

• 19. Mike Jones  |  April 1st, 2008 at 6:57 am

  We love you and wish you both the very best. You are in our prayers. When you return this summer we will have a Blue Grass Celebration at Moulton to raise more money for the rest of your expenses that you will have in the furture. We love you.
  Mike, Anita, Kala & Donald

• 20. Sabrina (Jordan's mom)  |  April 1st, 2008 at 10:44 am

  OK I am going to try one more time–bear with me because I have had some trouble with internet connections here.

  It is Tuesday, April 1 here and Jordan has just had her first electrical wave therapy and it went well. She got tired of having to lie still for 20 minutes but other than that no problems. She is scheduled for her first accupuncture at 2:30 - 3:00 today with physical therapy from 4:00 to 4:50 every day without a treatment. Her first treatment is Wednesday by IV some time between 2:30 and 4:30 in the afternoon. Her first lumbar puncture is scheduled for friday from 2:30 to 4:30 pm. Stem cells are done on Monday, Wednesday and Friday from 2:30 to 4:30 pm and they are picked up from the airport right before this and brought straight to the hospital. I know this because after we got off the plane here Friday we went around to the cargo delivery area and picked up the days stem cells and brought them to the hospital. In addition to Jordan please pray for Ricky from TXa 40 -year-old LT. on the police force who was going to help a fellow officer and a 17-year-old tried to beat the light and Ricky swerved to avoid him-flipped his vehicle three times and is paralyzed from his waist down. He has been here with his mom (his wife left him) two weeks and told me he seems to be getting some feeling back in his internal organs, This gave me encouragement. Thanks so much for the prayers–I really hope this blog entry works.

  Sabrina and Jordan

• 21. Sabrina (Jordan's mom)  |  April 1st, 2008 at 10:49 am

  One more time:

  Jordans schedule is: 8:30 am - 8:50 am electrical wave therapy
  9:00 dr visits
  2:30 to 3:00 accupuncture except for treatment days
  4:00 TO 4:50 physical therapy except for treatment days
  Wednesday treatment by IV
  Friday treatment by lumbar puncture

• 22. Julie  |  April 2nd, 2008 at 7:08 am

  Sabrina and Jordan- In your honor- I’m getting my accupuncture done tomorrow. If you need it when you get back- have the doctors write out what she needs and I’m sure Dr. Hunter will be glad to help. You are in our thoughts and prayers.
  Julie

• 23. DENELDA STEPHENS  |  April 2nd, 2008 at 10:04 am

  Hi, Sabrina and Jordan…
  I hope all is going well. A lot of people are praying for you.

  Always remember- All things are possible through Jesus Christ.

• 24. Lowman Chiropractic Center  |  April 3rd, 2008 at 9:55 pm

  Jordan,
  All of us at Lowman Chiropractic Center are praying for you and thinking of you A LOT!!!! We Love You!!

  Sabrina,
  You are also in our prayers and thoughts. Hang in there and know we are thinking of you daily!!

  Dr. Lowman,Judy, Deb, and Misty

• 25. Carol Harris  |  April 5th, 2008 at 1:37 am

  Susie is keeping us informed at prayer group at Sulphur Springs. We are glad to hear things are going well and will continue to keep you in our prayers

• 26. Ralph Hooks  |  April 5th, 2008 at 8:59 am

  Hope everything goes well. It’s a shame that this procedure can not be accomplished in the States. Stem Cell treatment holds great promise for many diseases. Hopefully, this will be the magic bullet to put her disease at rest. Thoughts and prayers with the family.

• 27. Julie  |  April 6th, 2008 at 6:40 am

  Just wanted to drop you a line to know I’m checking in and enjoying the journey with you. My prayers are with you as I know God is performing a miracle in Jordan’s life.

• 28. Venita Jones  |  April 7th, 2008 at 2:16 am

  Mrs. Stover and Jordan, I have been trying for over a week to get on this blog. I am so excited to have finally made it. I hope things are going well. You are in my thoughts and prayer DAILY!! Venita

• 29. Venita Jones  |  April 7th, 2008 at 2:22 am

  Jordan, how are things going? I am thinking of you and I hope things are going well. Venita Jones

• 30. Phyllis Rommens  |  April 7th, 2008 at 8:26 am

  Sabrina and Jordan, I go to church at Beltline and we were told today (through Allan and Evie) that Jordan has already had a good result in that she was able to speak! Praise God! Things must only get better from now on. Many prayers are with you both.

• 31. David Stringer  |  April 7th, 2008 at 8:42 am

  My prayers and hopes are with you all.

• 32. Lowman Chiropractic Center  |  April 9th, 2008 at 4:56 am

  Sabrina and Jordan,

  We are all thinking and praying for you everyday. Sounds like you both have your hands full but we know God is working miracles with that precious child everyday!!! We cant wait to see you both when you get home….

  Love from all of us at Lowman Chiropractic

• 33. Jessie Stover  |  April 10th, 2008 at 11:56 pm

  Good morning, I get up everymorning and go straight to the com. feel so good when I see all went well and you Sabrina are holding in there as we are here. It is wonderful Jordon that you are such a good representive for the good old USA. I told Horace you would be such a good patient because you always have been. It’s nice here today but suppose to get in the thirties this weekend. Jordon have you seen any little dogs there ? You need Sandy and Winsten over there to keep you company. Jordon everyone I see ask me how you are doing and when will you be home so as you already know I am sure LOVE and PRAYERS go with you everywhere you go. I am so happy you got to see Chris and Angie. From the postings it seems you you are feeling well again. Someone is having a Birthday soon I wonder who? Maybe we can have a party when you and Mama get
  home. Be a good girl and remember I love you very much.
  See you soon. Nana

• 34. Jessie Stover  |  April 12th, 2008 at 12:57 am

  HAPPY BIRTHDAY, HAPPY BIRTHDAY, HAPPY BRTYHDAY.
  OH, Boy, you have had a party in China. I think that was so nice. I tried before I went to bed last night but the note for the day had not come in but the first thing this morning there it was. I sure hope you are feeling better and slept good last night. Just think it is getting near and near to time for you and Mon to come home. Everyone is looking forward to seeing you both. You are in my prayers and I love you. Nana

• 35. Vicki and Brooke  |  April 15th, 2008 at 9:00 am

  Hi Jordan and Sabrina: Our prayers are with you. Been reading your blog and I feel like I am re-living the whole China experience! Hang in there, you’re doing great! Say HI to Dr. Mike, James, and Sophie for us! Aren’t they the best? Good luck,
  Vicki and Brooke

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