Settling in back at home
March 20th, 2008
We have been home for almost 2 weeks. Justin is stillnot sleeping throughthe night and his appetite is still huge! He gained 3 pounds while in China!
We didn’t expect Justin to have such a hard time adapting back to life in NJ. Whenever someone comes around to visit, or when he is around someone other than us, he gets extremely upset. I think it is a trust issue and the fact that he doesn’t recognize these people. He is getting better with his Grandparents, but he still gets upset and Jason or I have to hold him.
When we got home, we could tell Justin didn’t know where we were. It took a few days for him to remember his home and to put the visual image with the familiar sounds and smells. Transitioning to life with sight will take time.
His vision continues to improve. He reaches out for toys more and more, has started to attempt at crawling, and turns his head towards noises to see what it is. These are all things he never did before the treatment. It is amazing to watch his improvement and progress everyday. We feel his vision now reaches approximately 3-4 feet in front of him!
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3 Comments Add your own
1. Diana Diem | March 25th, 2008 at 6:33 pm
I am thrilled to hear of Justin’s improvements! There will definitly be a period of adjustment, and then he will just take off beautifully!
Lora, I can’t commend you and your husband enough – you have been the main consents in his life and continue to do every possible thing you can to understand and support your son!
I hope for your continued efforts and wish you the best outcome possible!
Diana & Dave
2. Dawn Villeneuve | March 25th, 2008 at 10:55 pm
Hello,
I have been following your story very closely over the past month or so and I was just wondering if it would be possible for us to correspond. My son Jakob was diagnosed 4 weeks ago with ONH and he is almost 3 months old now. I have read all the info gone through all the emotions of trying to accept this and your story has been a glimmer of hope for us. I would love to talk to you if you have the time. We are still awaiting a MRI so we do not know the extent of Jakob’s ONH but we are very hopeful, and committed to getting him all the help he needs, even if it is in China. Speaking to you would be very helpful. Thank you.
Dawn Villeneuve
dawnold@hotmail.com
403-455-0331
I am in Canada….so far no one has had the stem cell procedure done here.
3. Parris Cardenas | March 25th, 2008 at 11:19 pm
The progress Justin has made is wonderful! We are hoping to take our son Kade in the fall. He will be a year old. Please keep posting updates…it is so encouraging for those of us yet to go to China! thanks Parris
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