6 months post-treatment
August 28th, 2008
We can hardly believe it has been six months since we were in Hang Zhou, China. Our life back home has been very busy and extremely blessed.
Justin’s vision is so remarkable that strangers don’t believe me when I say he was born blind! Aside from the nystagmus and strabismus (which is getting better!), you wouldn’t know Justin had a visual impairment. He looks at objects from across the room and crawls so fast over to it and picks it up. His newest facination is closing our bedroom door and play with himself in the mirror! He locks eyes with everyone — which is my personal favorite achievement for him. It killed me knowing my little baby couldn’t look me in the eyes. He loves to try and grab the camera when taking photos, he chases after our poor cat, and he loves taking bike rides and looking all around. He is no longer afraid to reach out and touch something new and he is much better socially around new people or places.
His depth perception and 3-D perception is getting better. He is so close to walking now and his speech is slowly coming along. He has been playing “catch-up” the last 6 months and before long he’ll be just like any other toddler!
We are now patching his dominant eye to try and help the strabismus but if that doesn’t work out, he’ll have surgery to correct it. We can’t imagine how much better his vision will be after this is corrected. He is also getting new optic nerves photos taken soon to see if there is any difference in their size and color. Justin’s doctors are extremely pleased with his results and were truly shocked at the change in him!
Entry Filed under: Uncategorized, onh
3 Comments Add your own
1. Dawn Villeneuve | August 29th, 2008 at 11:49 pm
I am so very happy for you guys. Justin’s progress is nothing short of a miracle indeed. We are taking Jakob October 6th to Qingdao for one month. I am very nervous. If there is any advice you could pass on to me I would really appreciate it. I hope our story will be as great as yours. Congratulations
Dawn
2. Dawn | September 29th, 2008 at 11:45 am
Your story, along with the others I have been reading about, is amazing. My husband was born with ONH and sever nystagmus. He had a surgery to correct the nystagmus when he was 7 months old…but they still move some. My husband has been waiting for something like this for so long.
I was wondering if the doctors ever mentioned if this treatment will work for adults with the same condition. All of the patients we have heard of so far have been children.
I will pray for your Justin’s continued success and we will be following the progress as you post it.
Dawn
3. Jo and Little Josh | January 21st, 2009 at 3:13 am
Hi, I was wondering how Justin is getting on. I spoke to you a few months ago, as I have an 18 month old boy, Josh who is completely blind. We are hoping to take him to China at Easter for treatement. Also, do you have any advice you can pass on to us before we go, what to take etc. Thank you, Jo and Josh x
Leave a Comment
Some HTML allowed:
<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>
Trackback this post | Subscribe to the comments via RSS Feed