Archive for June, 2008
Well our time in China has come to an end. We will shortly be leaving for the airport and we are very excited to go home but dreading the long flight.
We will continue to update the blog from home with Justin’s progress and hopefull we will see some more improvements.
We thank everyone at the Xiaoshan Hospital for the wonderful care Justin has received and we thank everyone who has read our blog and sent us good wishes. It was very nice to see you all with us even though you are on the other side of the world.
See you all soon !
June 12th, 2008
Well it’s the final countdown ! We’re almost home, just a few more days to go.
The doctors saw Justin this morning and they said that they noticed some improvement. For example, when he’s curious about something he’ll turn his head to see it, not just with his eyes, which is something he didn’t do before and he has a little more movement in his arms. They are not huge improvements but they say that it takes time.
We had a banner made for the hospital and will be giving it to the staff tomorrow. It’s kind of like a tradition, most people here have one made thanking the staff and it’s cool because most of them have the patient’s home country. You can see that there are patients from all over the world.
June 9th, 2008
Well Justin’s last treatment was a success, he was good as usual and he had quite a bit of energy afterwards. Now all that’s left is physio therapy for the next couple of days and then we are on our way home…….and we can’t wait !
We are extremely happy with the results so far, they are small but still very important and can’t wait to see how he improves for the next 3 months.
June 6th, 2008
It has been a good week, Justin has been doing well in physio especially today. His physio therapist said that he’s doing better and is a little stronger. She is very nice and likes Justin a lot. When we came out of physio the nurses were calling Justin to go over and see them, so we went over and they took him, hugged him and posed with him for the camera. We lauged so much because the nurses really went gaga for him today. I guess he was having a good hair day…..lol !
Tomorrow Justin will have his last stem cell treatment, again it will be a lumbar puncture. We’re keeping our fingers crossed for another good transplant.
June 5th, 2008
Justin had his second spinal puncture today and all went well once again. I must say that he is the best little boy in the world. He didn’t cry, even smiled at the nurses right after and he was very patient for the following six hours. This time he only slept for about two hours after but still had to stay in bed for another four hours to make sure that there would be no side effects. I didn’t hear a peep out of him the whole time. Justin is our little champ !
He has improved a little bit, while he sits on my lap, his back is much straighter and I don’t have to support him as much. So, in our opinion, the stem cells are working and this is only the beginning. The doctors say that you start to notice the bigger improvements about two to three months later, so we are quite happy so far with his improvements. Oh….and not to mention his voice is much stronger….when he doesn’t want something he lets us know “NO MO” he says in a strong, firm voice….lol
June 2nd, 2008
