Keegan’s CP Blog

6 MONTH UPDATE

June 9th, 2009

Well, it has been 6 months from Keegan’s last lumbar puncture and it’s time for a general update. For those following the blog, I will do a quick overview. We saw initial improvements in Keegan’s eye contact, social skills, vocalization, and increased focus to tasks at hand. These improvements, however, were followed by regression. Keegan’s eye contact and vocalizations decreased and his obsessive behaviors became so bad that they interfered with daily life. He lost all ability to focus on tasks at hand and lost previously mastered skills such as matching like colors and pictures and identifying objects out of a field of three when asked. He regressed in his daily potty routine at school and his ability to answer questions appropriately decreased significantly due to his obsessive behaviors (as reported by both his speech therapist and special education teacher). He also became frustrated easily and began to bite himself in response to his frustration, a behavior that had long since disappeared.  Because of this, Keegan’s pediatrician had to increase his medication to help decrease these behaviors. Also, we have had orthopedic issues where Keegan’s right leg grew longer than his left so he is now braced almost up to his knee on a daily basis. So, where do we stand now? At this point in time, we have increased Keegan’s therapies to five days a week. This includes hours upon hours of one on one habilitation on a daily basis. He also receives speech therapy twice a week and started back with occupational and physical therapy this week. Keegan has not needed physical therapy since 2005. We are hoping with all these services in place that we will begin to move forward from here. I would like to note that we have received another e-mail from Dr. Hu (the CEO of Beike) and he has been very cooperative, stating he would also like to assist us in finding out what has caused Keegan’s regressions. Dr. Hu has invitied us back at Beike’s expense for further treatment and evaluation. We are discussing this with Keegan’s doctors here and are trying to decide what is in the best interest of our son. At this point, we do not have answers but will continue to search. Please keep us in your prayers.

Quinn and Kerry

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