MRI/SPINAL SERIES
We had our MRI/Spinal series done last Friday. We will be seeing the neurologist at the end of the month to have a more in depth discussion about the results. I guess you could say it’s a good news/bad news situation. The GOOD news is that there are no tumors!!! Thank God! The bad news is that the meninges (covering of the brain) is showing what they call “enhancement”, which could be due to either an infection in the brain, inflammation in the brain, or changes in Cerebral spinal fluid from the lumbar punctures. At this point, the neurologist reviewed Keegan’s MRI with a neurosurgeon and they are recommending another scan in 3 months to evaluate the situation. She also has some other recommendations that we will discuss at our appointment so I will keep you all posted. NOT GOOD NEWS!!!! So, here we sit…having no idea what’s going on in that head of his, hoping that all will be ok in the end. Keep the prayers going…we could use all the help we can get. As far as the spinal series, it was noted that Keegan’s spinal cord goes to a lower level (between L2-L3). According to our neurologist it usually terminates at L1-L2 but she believes this is not a significant finding. I have to say, this is all very upsetting news…quite different from what we were told we would see within 3-6 months post stem cells. According to the doctors in China, Keegan would have full muscle control at this point. It is quite the opposite. We’ve gained a brace and a physical therapist. There has been no improvement in motor skills…his balance and coordination are horrible (hence the broken tooth), and his fine motor has shown no improvement at all. We do not have any positive things to report which is heartbreaking. To watch your child regress after a treatment that was suppose to help is so devastating. We are hoping, with our team of therapists on board and the doctors all monitoring Keegan, that we will begin to progress in the coming months. Thank you to all who continue the prayers.
2 comments June 11th, 2009
