MONTH 7
Ok, so first off I have to apologize for not updating sooner. It has been very hectic here. We have more appointments now then we did when Keegan was a preemie. There’s a long list of updates so bear with me if I bounce around. Here goes…we met with Keegan’s neurologist to discuss his MRI and spinal series finally. We will be doing another MRI in September to check to see if the “enhancement” found in the meninges (covering of the brain) is still there. We have gained a few new doctors…a neurosurgeon and a urologist. Initially, Keegan’s neurologist was not worried about the MRI of the spine but has since changed her mind due to the fact that Keegan is now presenting with difficulties that appear to be related to the spinal issue. Due to the decrease in balance and coordination, the leg length discrepancy, and the fact that he is now losing bladder control, we are seeing a neurosurgeon to address this. We had our first appt about 2 weeks ago…he referred us to a urologist first to rule out any bladder condition (being that the bladder is a muscle and Keegan has cerebral palsy). We saw the urologist for the first time last week. They did an ultrasound of the kidneys and bladder (both pre void and post void). The urologist believes that the bladder function loss is due to the difficulties with the spine. Keegan has developed what is known as a low lying conus medullaris. By definition, Keegan’s spinal cord is now too long. The spinal cord should terminate at L1-L2 vertebrae leaving the nerve endings to dangle in the L2-L3 vertebrae. Because his terminates between L2-L3, it is compressing the nerve endings; hence interefering with lower extremity sensation. We meet with the neurosurgeon again this week to discuss spinal surgery to repair this problem. Also to note, while seeing the urologist, Keegan appears to have developed a kidney stone in his left kidney. We are scheduled for an abdominal and pelvic CAT scan on Friday. I will continue to keep everyone updated as we have more information. So, that is where we stand as far as a medical point. I would like to point out that although we had a rough start getting input with the doctors in China, they have been in contact with us and we are sending reports and collaberating on the issues as they arise. We will continue to update keegan’s condition monthly. Thank you for all of the prayers and support.
Add comment July 27th, 2009
