Posts filed under 'sod'
London is in pre-school
Hello all;
We trust everyone is having a wonderful summer as we are all hot and humid here in upstate NY. Sorry it’s been a while since we have had an update, but there really hadn’t been a whole lot of changes to talk about in a while.
London has started pre-school this week and is doing very well. Her vocabulary continues to grow and has about 30 words now. London’s eyes are still dilating and she sees light. She also stairs at us now and her eyes do not wonder nearly as much as pre stem cell. She has also started feeding herself finger food which is a huge thing!! She has a texture problem so she would never feed herself and now she has begun that task.
We have had a little setback and not quite sure why but she is refusing to stand or try to walk. When you try to get her to stand she lifts her legs out and up and refuses to use them. We have had her to the DR. and nothing is wrong with her legs so hopefully this will change soon.
With school she is seeing her therapists 3 days a week now so her progress should move forward more quickly now. We were playing with the lighted ball the other night and she was cracking up. We have discovered she loves the pool and she is playing in it all the time this summer with great fun!
We are still holding off to see the eye Dr. until about November or December so we can have the full effect of the stem cell growth. Her specialist in VT and her regular Pediatrician are both happy with her progress.
Keep the prayers going for London please and we will update in a few weeks when we have more to report!
Blessings to all!
London and family
July 14th, 2010
London is crawling
Hello Everyone;
London continues to have small improvements all the time. As I have said before her vocabulary is increasing all the time and that is really exciting for all of us to hear her sweet little voice. She has been trying to crawl for a few weeks now and finally made the plunge yesterday. London is crawling now! She has also stood herself up in her crib now and seems to be gaining more confidence by the day. We still don’t know just how much she is seeing other than some light, but it all seems to be coming together for her and we are happy with her results so far and know the stem cells will continue to grow for several more months. We are home for 3 months now and her changes are just wonderful. Thank you all for your continued support and as always I will update London’s blog as we have super news to report. Today’s photo is of London on her hands and knees which she was never able to do before our journey to China.
Blessings you to all;
London and Family
April 16th, 2010
Thank you God for all your Blessings
Wonderful news to report! I bought London several items to help with her therapy including something called a DNA ball, it’s a ball when squeezed lights up and is soft enough for London to play with. On Wednesday when the items arrived we gave London the DNA ball, it was flashing all kinds of colors and she reached right out for it no hesitation, grabbed it and started laughing! We don’t know how much she can see but it’s certain she is seeing these flashing lights and we are so blessed.
Today’s photo is of our little angel I believe giving Thanks.
God Bless you all!
Grandma Ruby
March 19th, 2010
London is looking at us more and holds her head up more
Hello All;
Again we are happy to report that London’s vocabulary is still increasing and she now says ”NICE” when you hold her and rub her back. Its wonderful to listen to her little voice grow more by the week. She is on her hands and knees but is not quite crawling yet and we trust that will happen soon. She seems to be looking right at us at more, but we just don’t know how much she can see yet. We had blood work done the other day which took us several days to get anything at all. Her veins were not cooperating as usual, but needless to say we still have another trip we will need to take because she didn’t have enough blood flow for all the tests. We will keep you updated as we learn more about her new life with stem cells. Thank you all for your continued support and we leave you with a photo of London this morning looking at her daddy, eyes more focused and head held up! How wonderful it is for us to see her eyes. She use to close them all the time or put her head down. We didn’t get to many good photos with her eyes open and head up, we are enjoying the beauty. Just how much of us she is seeing is anyone’s guess.
Until next time we leave you with many blessings for you and yours!
London and family.
March 9th, 2010
Hello Everyone;
We have been home for a month now and we are experiencing small changes. London’s vocabulary has improved. When we left to go to china she only said “Momma, Daddy, Nanna and Cy.” (her big brother) Since we have returned home she has now added “Ut oh, hi, no, good and good girl” most 2 year olds are already saying a lot more words than London, but this is huge for her and for all of us. Watching her and listening to her new vocabulary is wonderful. We still are not quite sure just how much she can see, but her eyes are still dilating and she covers her eyes if it’s dark and we put a light on them. She also picked up a flashlight we had sitting on the floor one morning but it’s only happened once so far so it could have been coincidence. Her balance continues to improve and she will stand holding onto the sofa for about 30 minutes at a time now and she will push herself up into a sitting position from a prone position. So these are the newest updates I’ll write more when we have additional information to pass along to you all. Thanks for always being here for us we appreciate your love and support so much.
Will talk to you soon, with light and love; The family of London Ruby Call
February 18th, 2010
London is looking right at the light!!
Hello Everyone;
We just wanted you to all see the new photo Jessie took of London last night. Jessie was shining the flash from her cell phone camera in London’s eyes and she was looking directly at the light. We don’t know how much London is seeing, but you can tell by the most recent photo she is seeing the light. Her eyes have never been so focused. We are happy to share the news.
With Light and Love from all of London’s family
February 3rd, 2010
Hello All;
Some good news to report today London saw her pediatrician and when we shut off the lights and put the Dr.s light in her eyes she covered them with her hands. The Dr. also said both eyes were dilating. So we are happy to report this new bit of news to you all.
Then this afternoon she came down to the newspaper and had an interview about our trip to China when it is published I’ll let you know so you can read it.
So for now we leave you with a bit of good news from Saranac Lake NY!
Blessings; The family of London Ruby Call
January 29th, 2010
We have settled back to our world at home now and London is very happy to be home again.
While we were in China we were trying to get London to say “HI” but she wouldn’t and we are happy to report that today she said “HI” not much to most people but a big step for London.
Her vocabulary is growing!
Will report more when we have anything.
January 24th, 2010
Turner, Jessie, London and Grandma Ruby
Well hello from the wonderful Adirondack Mountains;
Just a short note to let everyone know we made it home safe and sound. Only one delay at Newark airport the rest went pretty well considering the problems we had on the trip there. London did really well on the flight again and was happy to be held by all her loved ones who missed her while she was so far away from home.
I will post more as soon as we see anymore changes in our little trooper. Today’s photo is of Turner Gutmann our patient rep from Lake Placid Jessie, London and I just before we left Qingdao.
God Bless everyone for your support and continued love~
Ruby
January 20th, 2010
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