1-15-08
January 15th, 2008
Lydia had her first stem cell transplant yesterday. All is well today, she has a slight headache and occasional nausea but overall good. I must say, she really is a brave little girl. All of the doctors told us she was brave in the OR. We were all caught a little of guard yesterday because they came early for her, she was scared and tearful going into the OR which made me a bit tearful as well. She did not have sedation because it being her first time, the doctors wanted to make sure she was reacting well to the transplant. Lydia said,”The doctors rubbed my back like they were giving be a massage” I asked if if she felt the needle in her back and she said “no, I didn’t realize the doctors put a needle in my back”. After a few minutes of being back in the room, she was back to being herself. She was so sweet and said,”I think I am starting to see a little, I think I might be able to see the IV pole. Well,maybe” This was 2 minutes after the procedure. She really wants this to work about as much as the rest of us.
The difficult part of the day was that she was not able to eat or drink for a few hours before and after the procedure and not able to get up or more improtantly lift her head for 6 hrs after the procedure. She got to experience the bedpan and thought that was pretty cool-she had several experiences with it as she had 3 bags of IV fluids run -kept me busy!
Lydia continued to appropriately praise herself for being brave and not getting too upset. “Now I will know what is going to happen, so next time I won’t be scared”, she says. What an adult trapped in a little body!
Today will be a recovery day for all of us as I did not sleep much, checked on her frequently as did the nurse all night. I hope for both of us to get some good food today and enjoy being together. The doctors will round in a little bit and take out her IV which will make her happy. Her next stem cell treatment will be on Friday and will be an IV only. She will be able to eat,drink and run around as usual that day. Thanks to everyone for your continued support. Keep the comments coming, we really like to hear from everyone.
Entry Filed under: Uncategorized, onh
4 Comments Add your own
1. Ms. Christy W. | January 15th, 2008 at 11:01 am
Hi Lydia Lou!
I just read through all the blogs and I am so proud of you and how brave you are being I absolutely love hearing about your adventure!! In a way it is almost like being there with you. How is the weather there. The food sounds very interesting. It is super duper cold here and they say that it may snow a bit here in a few days. Have you learned in new words in Chinese yet? We miss you like crazy and I am praying for you.
Bye for now,
Christy
2. Genelle Cole | January 15th, 2008 at 11:08 am
Juli, I’ve been trying to keep up on your trip and the procedures since learning you had left for China. When I saw the pictures in the paper I couldn’t help but think back to when you came to the office with your Mom and would sit on my lap and draw, etc!
Guess those were the good ole days. Hope everything goes well and will continue to remember you guys.
3. Jen McKee | January 15th, 2008 at 11:39 am
Juli and Lydia- Jakob and I said prayers last night for Lydia’s treatment today. Jakob asked “mommy, why can’t she see? Are her eyes closed?” I guess it’s hard for a four year old to conceptualize but I must say Jakob is very excited for Lydia and proud of the brave little girl that she is. We can’t wait for more good news and I can’t blame Lydia for being excited about her treatments and willing herself to see. I agree with you Juli- we are all willing it!
4. jennifer turner | January 16th, 2008 at 11:43 am
Lydia, I hope this report was today and things have calmed for you. I could not tell when this report was sent, but hopefully it was after the bad experieince with the headache and vomiting.
(Mom,Just a little tip …. ask what she sees, not do you see? That way we will know if it is working. I am sure you know this though. )
Keep up that brave attitude! We continue to work on books for you and Ms H is still at school, but she will be having some of that poking and ivs as likek you.
Keep up the good work!
Ms Jennifer
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