Lydia’s Optic Nerve Hypoplasia Blog

8-21-08

August 22nd, 2008

Still no results from Lydia’s VER a couple of weeks ago.  Apparently results have been read and interpreted, waiting for the transcriptionist to get to the bottom of the pile of tapes. 

Otherwise, Lydia is doing very well.  She had her first day of school today, she is now a 1st grader.  The paragraph below is some very exciting news about her vision.  I thought I should also mention I tried to test her vision myself at my optometrist appointment . The big E was projected on the wall , I held her a different angles and didn’t tell her what she was looking at. Unfortunately, all she was able to see was the light from the projector.   Just thought that might keep things in perspective for everyone.  Oh well, the news below is very exciting and more functional for her right now anyway.

We took our annual before school vacation in St Louis and had a lot of fun!  Our highlight was the Zoo.  Lydia was able to see the Asian elephant and the black rhinos.  They were all back in  corners until we came up to the fence, then they made their way right up in front of us.  The elephant put on a little show with his trunk, flapping his ears.  They seemed to really know Lydia wanted to see them, and she did!!!  She pointed to each of them and said, “Wow I can see him!”  She was able to follow each animal as they moved around.  It was so cool!   On our way from moms house to St Louis, I asked her if she was able to see anything out the window and she said “I can see the sky and I think that is grass”  The landscape outside was rolling hills of beautiful green trees and a bright blue sky.  It is so nice to know she is beginning to have an understanding of the world around her.  She is still very much visually impaired and needs to be prompted to use her vision, but she really tries when I ask her.  I am always a proud momma. 

Thank you all again for your prayers and well wishes during this very exciting time!  I will update when I have some news.

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