StemCellsChina.com

Fill out my online form.
Sierra resumes life, with style 打印 E-mail
Spinal Muscular Atrophy
周日, 14 3月 2010 09:30
There are no translations available.

Source:  Floridatoday

HTITUSVILLE — It's back to Facebook, Club Penguin and school tests for 9-year-old Sierra Journey Factor, who nearly lost her life four months ago.

Sierra was on life support for 10 days in the intensive care unit at Arnold Palmer Hospital for Children in Orlando. She underwent surgery and now uses a ventilator to breathe.

"She did die, and they brought her back," said her mother, Shaylene Akery. She said doctors worked for hours in December last year to remove a mucus plug from Sierra's lung.

But none of this stopped the perky performer from stealing the show last weekend at the Shining S.T.A.R.S Pageant and Fashion Show at the Ormond Beach Performing Arts Center.

"It's the most beautiful and inspiring thing I've ever been a part of," Akery said.

The show, hosted by the Beu Sisters, features participants of all ages who have special needs.

"I had a lot of fun doing it," Sierra said of performing the song "Part of Your World" from "The Little Mermaid." Sierra's solo drew a standing ovation from the theater crowd.

But for Sierra, Miley Cyrus is the shining star who makes her go gaga. "I'm really close to meeting her," Sierra said.

When she was in the hospital, Sierra received a special package from the Cyrus family.

"I got all different color scarves -- blue, pink, yellow. I thought, Wow! I got a package from the actual Miley Cyrus."

Last fall, Sierra spent more than a month in China receiving stem cell injections for Type II spinal muscular atrophy, a genetic disease that affects the part of her nervous system that controls voluntary muscle movement.

She also has restrictive lung disease, a byproduct of SMA, and polycystic kidney disease, a genetic disorder characterized by multiple cysts in both kidneys.

"We would like to go back for more stem cell treatments, but it's just so hard to raise that much money. I know the stem cells are the reason she survived when her lung collapsed. She healed and recovered faster than any of her doctors expected," Akery said.

"She's still here, and she's my inspiration," the girl's mother said.

 

Site Search

患者经历

ALS-Reynolds先生
ALS - Ms. Brooks
Ataxia - Mr. Arruda
共济失调- Blair先生
共济失调-Crowter女士
共济失调-Graf女士
共济失调-Gray女士
Ataxia - Ms. Jones
共济失调-K. Graf先生
共济失调-Knoblauch先生
Ataxia - Mr. Martin
Ataxia - Mr. Nate
Ataxia - Mr. P. Flynn
Ataxia - Mr. R. Flynn
共济失调-T. Graf先生
Ataxia - Mr. Wallace
Autism - Mr. Lachlan
Autism - Ms. Maria
自闭症-Pacis先生
自闭症-Wang先生
Autism - Mr. Yu
Batten Disease - Mr. Dell'Aringa
Brain Injury - Mr. Anduha
Brain Injury - Mr. Ashton
脑外伤-Blazevic先生
脑外伤-Cui先生
Brain injury - Mr. Hayward
Brain Injury - Ms. McAfee
Brain Injury - Mr. Nguyen
Cerebral Palsy - Mr. Andrew Ricci
脑瘫-Bocskai先生
Cerebral Palsy - Mr. Boles
脑瘫-Caprioru先生
Cerebral Palsy - Ms. Ella
Cerebral Palsy - Mr. Gryphon
Cerebral Palsy - Mr. Lawrence
Cerebral Palsy - Mr. Nicholas
Cerebral Palsy - Ms. Sosa
脑瘫-Teskey先生
Cerebral Palsy - Ms. Tahiliani
Cerebral Palsy - Mr. Phang
Cerebral Palsy - Mr. Will
癫痫- Madura女士
Epilepsy - Ms. Pinczker
Friedriech共济失调-Maher女士
Friedriech's Ataxia - Mr. Zachary
Glut1- DS - Ms. Jordan
Heart Disease - Mr. Maxwell
Huntington's - Ms. Arroyo
ION - Mr. Stevens
Muscular Dystrophy - Mr. Russ
多发性硬化-陈女士
多发性硬化-Frey先生
多发性硬化-Glenn女士
MS - Ms. Helm
多发性硬化-Kay女士
MS - Mr. Kenneth
MS - Mr. Ozzello
MS - Ms. Sprague
ONH - Ms. Barlett
ONH - Ms. Hallie
ONH - Mr. Justin
ONH - Mr. Lawrence
ONH - Ms. Lilli
ONH - Ms. Manuela
MSA - Mr. Haywood
Parkinson's - Mr. Buckley
Parkinson's - Mr. Brown
Parkinson's - Mr. Budiono
Parkinson's - Ms. Chin
Parkinson's - Mr. Devlin
Parkinson's - Ms. Edwards
Parkinson's - Ms. Kluber
Parkinson's - Ms. Rouen
帕金森病-Thomas女士
Parkinson's - Mr. Woodward
ROP - Shirdesh
ROP - Tatyana
Rett Syndrome - Ms. Laura
SMA - Ms. Gologan
SMA - Mr. Justin
脊髓性肌肉萎缩-Loredana女士
SMA - Ms. Nicole
SMA - Ms. Nirma
SOD - Claire
SOD - Ms. Frenette
SOD - Ms. Giulia
SOD - Ms. Megan
SOD - Mr. Peterson
脊髓损伤-Aldrich先生
脊髓损伤-Allen先生
Spinal Cord Injury - Mr. Ben
Spinal Cord Injury - Mr. Carson
脊髓损伤-Iordache先生
Spinal Cord Injury - Ms. Jennifer
Spinal Cord Injury - Mr. Maricelli
脊髓损伤-Pai女士
脊髓损伤-Radu女士
Spinal Cord Injury - Mr. Savage
脊髓损伤-Zuo先生
中风- Hollis女士
中风- Jing女士
中风- Li先生
中风(儿童)-Farkas女士
中风(婴儿)-Gresco女士
中风(婴儿)-Hildko先生