" He’s making more eye contact, and initiating the eye contact himself. He’ll come to me wanting things. Normally he would just walk around in circles and get anxious and upset, and I’d have to work it out. But now he’s coming to me. "
Adam Kitchen and his wife, Laurie, sat with us in Qingdao for an interview. If you can't see the video, click here.
Age 32, USA
Diagnosis
Adam was born with Optic Nerve Atrophy.
Condition Prior to Treatment
Adam describes his vision as, "If you took your glasses and you put Vaseline on them, that’s basically the way that I would see. You can kind of see things that are there. Just, there's no clarity and no definition to it."
Adam wore glasses that brought his vision to the "2200-2400" range, and he was classified as legally blind.
Adam's wife Laurie describes Adam as highly functional for a legally blind person but says, “where we do notice [his blindness] is when he puts something down, walks away, comes back, doesn't know where he put it."
Laurie describes Adam's challenges keeping up with his four children saying, “now that our kids are getting older, our oldest daughter sings in concerts… our other ones have done sports and things. And he can never tell which one is which. He always asks me which one is which."
Adam used magnifiers and glasses to help accommodate his Optic Nerve Atrophy.
Treatment Received in China
Adam received nine stem cell transplants, 4 via IV and 5 lumbars. Adam also received acupuncture and facial massage during therapy.
Condition Following Treatment
Adam experienced improvements in his vision during his therapy in China.
Laurie told us “in Adam's case now, he can see the date on his watch. He had ever been able to see that before. He's reading things on his Blackberry that he was never able to see before. Are these small things? To you and me, maybe. To him, no. They're huge."
Adam said “after I received my second injection… we had gone out and did the testing out there again. And at that point I could see the big E from a full meter back. So about 3 feet back from when I first started."
"When I first showed up, it was about 216 centimeters back is where I could see the E. And I've gone up to about 405 centimeters. So it's nearly doubled since."
Adam talked about what it felt like to experience new vision for the first time saying, “there’s just so much pop to everything. Just as I walk through the [Hospital] Common Area, the sofas have those little white seams on the side. It just seems like all the sudden now it just pops out at me. Just every little line, or every definition is coming out all of the sudden."
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