Alexander Disease Video and Blog Links Imprimir Correo electrónico
Video Update
Miércoles 23 de Junio de 2010 11:28
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One past Ataxia stem cell patient brought us quite a follow-up this week.

"Hello, it’s been awhile. I’ve been home from my stem cell treatment in China for about 3 1/2 years. I’m still doing great… realistically, if I’d never gone for the treatment, if I’d taken to heart all the “facts” that the doctors told me at home, I wouldn’t be writing this now, I wouldn’t be walking, talking, eating or drinking easily, reading books , watching T.V., spending time with family & friends ie. I wouldn’t be living much of a life OR I’d be “living” one that was severly compromised…needlessly..."

From Christine's Ataxia Blog

Check out this new interview with Justin and his mother, Sary. Justin has Alexander disease. It's caused by a rare genetic mutation and doctor's didn't expect him to make it to four. His mother tells us that he kept surprising her by just not dying like they said he was going to. She brought him to China to receive transplants of umbilical cord blood stem cells. Here's Justin's story.


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