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Lawrence - ONH Stem Cell Patient Imprimer Envoyer
ONH/SOD
Lundi, 07 Juin 2010 16:55
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Optic Nerve Hypoplasia

17, USA

Lawrence's Blog

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Condition


Optic Nerve Hypoplasia.


Course of Treatment


Lawrence received 9 Stem Cell Transplants, 4 via IV and 5 via spinal.  He also received electric wave therapy and acupuncture.


Reason for Coming for Treatment


Lawrence Brown III was born with Optic Nerve Hypoplasia. The doctors originally told his family that there was no treatment available for ONH. Lawrence had limited light perception and was able to see colors. However, he was not able to distinguish shapes or any detail.

He used several tools to help aid his vision such as JAWS, a talking computer program, and a cane. He was unable to read print letters, and learned to read Braille. Lawrence can read English, Spanish, and French Braille.
 
Lawrence was very successful in his every day life, but his family felt that any treatment available to help give him more independence was worth a try.

Condition After the Treatment


While Lawrence was receiving treatment in the hospital, he began to notice several changes to his vision. He noticed that light seemed much brighter to him, and colors appeared much more vivid. He was able to distinguish objects when walking outside, like flowers or written Chinese characters on walls. The nystagmus of his eyes decreased significantly.

He began to see the movement of people and objects instead of just feeling it. This often caused him to become dizzy and uncomfortable.

During his stay, Lawrence was able to see and recognize extremely large print letters for the first time in his life. He was able to find objects he had dropped on the floor.

After returning home, Lawrence noticed that he was able to see shadows at night. People's facial features became clearer. He was able to pick up a dropped object on the floor without searching for it with his hands.

Lawrence was able to march out with his marching band for short distances without having anyone help him.  Maneuvering through streets and crowded sidewalks became easier for him. Lawrence learned to read the print alphabet at 400 font. He stopped using his cane while at school.







Mise à jour le Lundi, 07 Juin 2010 17:07
 

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