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Septo-Optic Dysplasia
Treatment brings new vision Nyomtatás E-mail
Septo-Optic Dysplasia
2010. december 27. hétfő, 10:39
There are no translations available.

Source:Lincolntimes News

Christmas has come a little early for Andrew Dellinger, a single father, and his 4-year-old daughter, Madison, who live in Denver.

All he wanted was for his daughter was to see the world in a whole new way — literally. Madison was diagnosed at four months old with septo optic dysplasia, along with the associated condition of optic nerve hypolasia. By clinical standards, she is completely blind.

However, that is slowly changing.

Andrew, Madison and his mother, April Warren, recently spent a month in China, where Madison received stem-cell treatment from Beike Biotechnologies.

After several treatments, Madison saw a clock, but thought it was a button, and was able to see that a clothes hamper, a picture and a suitcase has been moved in her hospital room.

“We were in shock,” Dellinger said of seeing his daughter’s vision improve for the first time. “It was a good feeling. Just knowing she even got that small of an improvement made it every bit worthwhile.”

Dellinger has seen Madison’s reaction to the shiny, brightly-lit Christmas tree at his father’s home. She never showed much reaction to the decorations in the past.

“She just sits and stares at the Christmas tree at my dad’s house,” Dellinger said. “She is just in a daze with it and this is the first time she’s ever seen it.”

But getting to the point of improvement was a tough journey. Madison’s treatment consisted of four 30-minute intravenous (IV) therapy and four six-hour lumbar punctures over a month-long period of time.

“The puncture is a small incision on the back and stem cells are injected,” Dellinger said. “The difference is it goes straight to your brain through the spinal fluid as opposed to the bloodstream with the IV injections.”

Overall, Dellinger said his daughter did very well with the treatment. Doctors expect the treatment to take effect in a year, but Dellinger has already seen improvement.

“There is not a set percentage or standard as far as how much sight she will get back, but so far, hers seems to be a successful case,” he said.

Dellinger and his family do exercises with Madison on a daily basis to keep her optical nerve stimulated. The exercises also help Madison rely more on her eyes instead of her hands.

“Through the research we’ve done, the stem-cell treatment was the only route we could take,” Dellinger said.

“People made it as comfortable as they could. They were very accommodating and caring people.”

Dellinger said the trip to China would not have been possible without the community’s help. Several organizations hosted fundraisers to help pay for the treatment, which cost more than $35,000.

“That is what made it a reality,” Dellinger said of the community’s efforts. “I am just kind of at a loss for words. I am just really grateful. I don’t know how I could ever repay it to show my gratitude. Thank you is just not enough.”

To learn more about Madison’s trip and follow her progress, visit www.
stemcelschina.com/blog/
madisondellinger.

 

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Eying China Nyomtatás E-mail
Septo-Optic Dysplasia
2010. október 26. kedd, 11:21
There are no translations available.

Source :Alberta Local News

Baby Beau Gallipeau is a step closer to going to China for stem cell treatments after community members gathered in Sylvan Lake for a Mission for Vision fundraiser this weekend.

The Red Deer-based parents of the 21-month-old who is going blind and experiencing growth problems from a rare disorder want to take him overseas for umbilical cord stem cell treatments that are unavailable in Canada.

While the $50,000 treatments have produced “amazing” results, reversing symptoms for some people with Beau’s condition, Beau’s parents, Becky Bossert and Jessie Gallipeau, realize there are no guarantees. “We’d rather say we tried everything than we did nothing at all,” said Bossert.

The mother had her first indication that something was wrong with Beau shortly after delivery. While Bossert had to be induced into labour because she was over-due, doctors were perplexed when Beau appeared under-developed. “I was at 42 weeks (along) and he was at 37 weeks . . . Everything was behind, his overall gestation,” said Bossert.

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Blind child finds healing in China Nyomtatás E-mail
Septo-Optic Dysplasia
2010. január 03. vasárnap, 22:02
There are no translations available.

Source: Fredericksburg

By CATHY DYSON

King George County child who was born blind shows improvement after stem-cell treatments in China

The family of Summer Grace, who was born blind, believes their 18-month-old "saw the light" after controversial medical care in China.

Halfway through her stem-cell treatments, Summer was taken into a dark bathroom where a doctor shone a flashlight, said Beth Allison, her grandmother. Summer followed the ray of light with her eyes, something she'd never done.

"It was pretty amazing," said Mandy Allison, Summer's mother.

The Allisons, who live in King George County, hope the milestone is one of many Summer will experience.

"I'm just going to keep praying and hoping the stem cells do their job and work their miracle," her grandmother said. "It should be an exciting year for her."

Summer received eight stem-cell treatments from umbilical-cord blood during her 33-day stay in a Chinese hospital. Her family hopes the treatments will grow her optic nerve, which didn't develop on its own, and cure the rare disorder from which she suffers: septo-optic dysplasia.

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Shepherdswell boy's pioneering stem cell treatment Nyomtatás E-mail
Septo-Optic Dysplasia
2009. október 19. hétfő, 10:23
There are no translations available.

Source: Thisiskent

PIONEERING stem-cell treatments have been carried out on a Shepherdswell three-year-old, thanks to help from Express readers.

Brave Travis Ransley-Warnes suffers from septo-optic dysplasia, meaning the optic nerves behind his eyes have not developed properly, leaving him unable to see. He also suffers from a brain condition that causes learning restrictions, seizures, breathing

difficulties and problems eating and swallowing.

In a bid to give their son a chance of sight and better mobility, parents Chris and Hazel launched a campaign to raise the £35,000 needed to take him to the Bethune International Peace Hospital, near Bejiing, for the radical treatments coordinated by experts from the Beike Biotech company. The treatment, which involves using umbilical-cord blood stem cells, is not available in the UK.

Following our front-page story on their battle last May, scores of generous readers, including pupils at Sibertswold school, Dover Lions, and Shepherdswell Golf Society, donated cash and held fundraisers to help the Ransley-Warnes family to undertake their 16,500-mile trip.

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Help baby Sam get his sight back Nyomtatás E-mail
Septo-Optic Dysplasia
2009. június 02. kedd, 14:51
There are no translations available.

 

 Source: Waterford News   

                                                     

A LOCAL mother is hoping that she can free her little boy from a lifetime of darkness and give him the opportunity to live a normal life.


 

Two-year-old Samuel (Sam) Walsh has severe developmental delay, epilepsy and is also blind.

 

His parents are hoping to raise €35,000 to bring Sam to China for special stem cell treatment to cure his blindness.

 

His mother, Pamela Horgan, told the Waterford News & Star that Sam was born a happy and healthy baby. When he was three months old disaster struck.

 

“I left him with his Dad David to attend an appointment. About 7.45pm I received a phone call from David to say that Sam was sick and to meet them at the hospital.”

 

When she arrived at WRH Pamela was told that her son had stopped breathing for a number of minutes. A neighbour had helped revive him before the ambulance arrived.

 

A CT scan showed that Sam had suffered a bleed to his brain and had to be transferred to Crumlin Children’s Hospital.

 

“We were told to say our goodbyes to him before we set off on the journey.

 

We drove up separately to the ambulance and every magpie I saw on his own I kept thinking the worst,” Pamela said.

 

Sam spent weeks in intensive care and it was there his parents discovered he was blind.

 

After a number of trips between WRH and Crumlin, Pamela said things were finally looking up for her youngest son.

 

“He was in good form, smiling and kicking his legs,” she said.

 

But another blow was to come for the Mooncoin family.

 

“In September 2007 I was in visiting him one morning and doctors asked if David could come in with me after lunch to meet the team of doctors. I had Sam on my lap and was playing with him and they told us the bleed hadn’t stopped and it was dripping like a tap the whole time. We were told Sam would only have until the end of October. I had to run off, I couldn’t listen to it; it was awful. I would-n’t wish news like that on my worst enemy.”

 

Trying to deal with the news was hard for the mum of three other children, Dillon, 10, Zoe, six and Adam, three.

 

“It was a shock to even find out I was pregnant, but once you have them you wouldn’t give them back for the world. My mam and aunt looked after them a lot and me and David set up home in the hospital.”

 

When the end of October drew near Pamela said it was unbearable.

 

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