Caernarfon tot begins stem cell treatment in China 打印 E-mail
Optic Nerve Hypoplasia
周五, 08 5月 2009 21:28
There are no translations available.

 Source: Daily Post

 

A BLIND toddler has flown 8,000 miles to China hoping doctors will restore some of his sight.

 

Joshua Clark, aged 21 months, from Caernarfon, was born with optic nerve hypoplasia (ONH) and is completely blind. His parents, Joanna and Anthony, were told no treatment was available.

 

But they hope cutting-edge stem cell therapy in China could let some light into his life.

 

An appeal to raise £40,000 to send Joshua was launched last October and with the help of Daily Post readers was quickly reached.

 

Joshua flew to Shanghai last weekend with his parents and grandmother Gill and is now settled at the Zhejiang Xiaoshan Hospital in Hangzhou, about three hours west of the coastal city.

 

They are keeping in touch with family and friends by sending e-mails, calling regularly on Skype, an online telephone system, and Joanna is also writing a blog.

 

 

She said: “We are calling my dad, grandmother and brothers at home via Skype which means we can see them and they can see us too, which is really clever.

 

“Wouldn’t it be fantastic if one day during this stay in China that Josh might get to see them on Skype as well.”

 

In her blog Joanna said the treatment started earlier this week and Joshua, is “doing very well.”

 

“Josh had his first stem cell treatment via an intravenous tube.

 

“Once they found a vein in his foot they attached a small clear bag with yellow fluid inside, which was the magic stem cells.

 

“The bag contains between 10-15 million stem cells, and took around 30 minutes to travel down the drip into Josh.

 

“He will have further infusions every four days.”

 

Joanna hopes the treatment will allow Joshua to detect light, see colours and objects and be able to tell whether it is night or day.

 

In all Joshua will have eight sets of stem cell treatments and spend six weeks in the hospital.

 

He is also having physiotherapy and electric wave therapy to help strengthen his leg muscles for crawling and walking, “He is doing very well. His appetite and sleep have been incredibly good since he’s been there, better than at home,” Joanna said.

 

On his return home he will have to spend an hour a day in an oxygen chamber for a year to help the stem cell treatment.

 

This was delivered to the family home in North Road, Caernarfon just before they left for China.

 

Joshua’s grandfather, Kevin, added: “Joanna and Anthony made their judgement to go to China based on a balanced view of medical advice and human instinct.

 

“I am keeping my fingers crossed that little Josh will be able to see something before too long.

 

“Without any treatment, there was no hope, so nobody should blame any parents for looking for a magic bullet that may have a positive effect.”

 

Two girls from Northern Ireland have just returned from the Chinese hospital with “pleasing results”.

 

One of the girls, three-year-old Dakota, who had previously been unable to identify shapes and objects, can now recognise faces.

erylcrump

LAST_UPDATED2
 

Site Search

患者经历

ALS-Reynolds先生
ALS - Ms. Brooks
Ataxia - Mr. Arruda
共济失调- Blair先生
共济失调-Crowter女士
共济失调-Graf女士
共济失调-Gray女士
Ataxia - Ms. Jones
共济失调-K. Graf先生
共济失调-Knoblauch先生
Ataxia - Mr. Martin
Ataxia - Mr. Nate
Ataxia - Mr. P. Flynn
Ataxia - Mr. R. Flynn
共济失调-T. Graf先生
Ataxia - Mr. Wallace
Autism - Mr. Lachlan
Autism - Ms. Maria
自闭症-Pacis先生
自闭症-Wang先生
Autism - Mr. Yu
Batten Disease - Mr. Dell'Aringa
Brain Injury - Mr. Anduha
Brain Injury - Mr. Ashton
脑外伤-Blazevic先生
脑外伤-Cui先生
Brain injury - Mr. Hayward
Brain Injury - Ms. McAfee
Brain Injury - Mr. Nguyen
Cerebral Palsy - Mr. Andrew Ricci
脑瘫-Bocskai先生
Cerebral Palsy - Mr. Boles
脑瘫-Caprioru先生
Cerebral Palsy - Ms. Ella
Cerebral Palsy - Mr. Gryphon
Cerebral Palsy - Mr. Lawrence
Cerebral Palsy - Mr. Nicholas
Cerebral Palsy - Ms. Sosa
脑瘫-Teskey先生
Cerebral Palsy - Ms. Tahiliani
Cerebral Palsy - Mr. Phang
Cerebral Palsy - Mr. Will
癫痫- Madura女士
Epilepsy - Ms. Pinczker
Friedriech共济失调-Maher女士
Friedriech's Ataxia - Mr. Zachary
Glut1- DS - Ms. Jordan
Heart Disease - Mr. Maxwell
Huntington's - Ms. Arroyo
ION - Mr. Stevens
Muscular Dystrophy - Mr. Russ
多发性硬化-陈女士
多发性硬化-Frey先生
多发性硬化-Glenn女士
MS - Ms. Helm
多发性硬化-Kay女士
MS - Mr. Kenneth
MS - Mr. Ozzello
MS - Ms. Sprague
ONH - Ms. Barlett
ONH - Ms. Hallie
ONH - Mr. Justin
ONH - Mr. Lawrence
ONH - Ms. Lilli
ONH - Ms. Manuela
MSA - Mr. Haywood
Parkinson's - Mr. Buckley
Parkinson's - Mr. Brown
Parkinson's - Mr. Budiono
Parkinson's - Ms. Chin
Parkinson's - Mr. Devlin
Parkinson's - Ms. Edwards
Parkinson's - Ms. Kluber
Parkinson's - Ms. Rouen
帕金森病-Thomas女士
Parkinson's - Mr. Woodward
ROP - Shirdesh
ROP - Tatyana
Rett Syndrome - Ms. Laura
SMA - Ms. Gologan
SMA - Mr. Justin
脊髓性肌肉萎缩-Loredana女士
SMA - Ms. Nicole
SMA - Ms. Nirma
SOD - Claire
SOD - Ms. Frenette
SOD - Ms. Giulia
SOD - Ms. Megan
SOD - Mr. Peterson
脊髓损伤-Aldrich先生
脊髓损伤-Allen先生
Spinal Cord Injury - Mr. Ben
Spinal Cord Injury - Mr. Carson
脊髓损伤-Iordache先生
Spinal Cord Injury - Ms. Jennifer
Spinal Cord Injury - Mr. Maricelli
脊髓损伤-Pai女士
脊髓损伤-Radu女士
Spinal Cord Injury - Mr. Savage
脊髓损伤-Zuo先生
中风- Hollis女士
中风- Jing女士
中风- Li先生
中风(儿童)-Farkas女士
中风(婴儿)-Gresco女士
中风(婴儿)-Hildko先生