Cameron - ONH-SOD Stem Cell Patient Print E-mail
ONH/SOD
Monday, 14 June 2010 11:13

Cameron Peterson

Optic Nerve Hypoplasia (ONH/SOD)

Treated at 18 months old

We would like to thank Cameron's mother and grandmother for preparing this Patient Experience for us. If you would like to get in touch with Carol please submit an inquiry to StemCellsChina.com.

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Cameron was treatment was from August 7- August 27, 2007  in Hangzhou
 
The flights were long and tiresome.  Thankfully Wendy had a car pick us up at the airport in Hangzhou, we were then taken to the hospital. When we got off the elevator on the stem cell ward we were greeted by a friendly nurse who immediately took us to our room. The staff at the hospital left us to sleep and recuperate from our long trip until late the following day.
 
The next day after signing the necessary papers for Cameron's treatment we met the doctors, therapists and nurses while they explained the procedures of Cameron's treatment.  After Cameron's blood work we were introduced to Cameron's Acupuncture therapist and his Physical therapist.  It has always been difficult for nurses in the U.S., to draw blood from Cameron as his veins are so tiny, the Chinese nurses seem to be exceptionally skilled as they could get the needle in every time with out collapsing his veins.
 
We were so amazed by the genuine care and compassion of the nurses.  The nurses nicknamed Cameron the "Little Prince" (Rylea Barlett had been treated the month before Cameron and they nicknamed her the "Little Princess") Cameron was 18 months old and didn't like strange voices or anyone except Mommy and Daddy touching him, so we were amazed that he would go to the nurses so willingly. Sally quickly became Cameron's favorite nurse, she sang to him with her soft voice while she fed and changed Cameron on a regular basis.
 
Cameron screamed the first time Martin the therapist gave him acupuncture, after that first time he was fine with the acupuncture.  Cameron responded well to Daisy,  his Physical therapist.
 
Cameron had two IV's and two Lumbar punctures.   Dr. Mike, Dr. Ma  and Dr. Dave were Cameron's physicians. Cameron went to the OR for his Lumbar punctures, he had a sedative and local anesthesia, the procedure took 1 hour. After these procedures Cameron slept very well he didn't seem to have any discomfort.  Even after the second lumbar puncture Cameron didn't seem to show signs of any back pain, we gave him some Tylenol just in case.
 
The morning after Cameron's second Lumbar puncture he woke up around 6:00, as usual. We turned on his Back-Yardigans video and gave him a bottle. Normally Cameron would lay on his back and drink his bottle and fall back asleep, but this morning he sat up in the crib, pulled himself to the end closest to the TV while he sat with his legs between the bars his eyes were fixed on the TV.  Cameron sat for at least 10 minutes starring at his favorite cartoon, pre-SCT Cameron would point his ear towards something he heard because he could not see more than a slight shadow one inch in front of his face.

 

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