ОПЫТ ПАЦИЕНТА- ГИПОПЛАЗИЯ ЗРИТЕЛЬНОГО НЕРВА/СЕПТО-ОПТИЧЕСКАЯ ДИСПЛАЗИЯ

Источник: Parentdish

Четырехлетняя Изабелл Эванс (Izabelle Evans) родилась с септо-оптической дисплазией, врожденным заболеванием. вызывающим дефицит гормонов и проблемы с двигательными функциями. С рождения она была слепой, а сейчас она видит с расстаяния 3 футов. Эти улучшения произошли у нее благодаря курсу лечения стволовыми клетками в Китае.

Из-за врожденного заболевания у Изабелл всего лишь несколько сотен зрительных нервов, связывающих глаза с головным мозгом, в то время как у большинства людей миллионы таких нервов.

Родителям Изабелл, Джэймсу Еванс (James Evans) и Холли МакХаг (Hollie McHugh), по двадцать четыре года. Они - выходцы из острова Хайлин, Гэмпшир, Англия. Джэймс и Холли в своем интервьюLondon's Daily Mail сказали,  что ничто не может сравниться с эмоциямит в тот момент, когда их дочка впервые посмотрела им в глаза и произнесла "мама" и "папа".

"Через несколько дней после возвращения домой, мы нарядили рожденственскую елку и она потянулась к фонарикам на гирлянде. В прошлом году она даже не заметила. что у нас была елка",- рассказала в своем интервью газете МакХаг.

В случае с Изабелл, трансплантированные через канал спинного мозга стволовые клетки помогли восстановить зрительные нервы. Клетки были экстрагированы из пуповин здоровых детей.

После тщательного изучения всей имеющейся информации о заболевании Изабелл и сбора необходимой суммы денег, родители привезли девочку на лечение в Китай. По информации, предоставленной Daily Mail, процесс сборов  занял больше года. Месяц, проведенный в Chengyang People's Hospital в Циндао (Китай), дался Изабелл нелегко. Пять дней в неделю ей нужно было выполнять множество изнурительных процедур. Кроме инъекций стволовыми клетками ей был расписан курс физиотерапии, аккупрессуры, терапии для тренировки способностей стоять и электроволновой терапии для стимуляции работы твердых мышц- еще один симптом ее заболевания.

Тем не менне, вскоре результаты лечения оправдали все затраченные силы. "Мы увидели у нее большие изменения. Ее речь стала намного лучше. До лечение в Китае она могла произнести лишь 1-2 слова, а сейчас она уже может поддержать небольшой диалог. Улучшились способность ходить и она уже может сама держать вес своего тела на ногах",- рассказала МакХаг в своем интервью Daily Mail.

Родители Изабелл в своем интервью сказали. что сейчас они ждут, что произойдет в следующие 6 месяцев после лечения. "Мы готовы ждать, так как стволовые клетки сохраняют активность на в течение 6 месяцев при условии, что она не будет болеть. Мы будет внимательно наблюдать за тем, что будет происходить, насколько улучшится ее зрение, и потом уже примем решение, поедем ли мы второй раз в Китай для прохождения повторного курса лечения",- сказали родители девочки.

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Age 40, USA

We'd like to thank Shanan for preparing this Patient Experience text for us.

Condition

I was born with underdeveloped Optic Nerves that were also slightly deformed.  The diagnosis is Optic Nerve Hypoplasia with very mild Septo-Optic Dysplasia (SOD) however no affects of the SOD have ever been present.  Before going to China I had a little light perception in my right eye and 20/2400 vision in my left eye.    

Reason for Coming for Treatment

I am 40 years old and the mother of two young children.  I live a very full life of working, volunteering in my children's classrooms and activities, reading, bike riding, running and generally raising my family as any sighted mother would do, but anybody with a visual impairment knows that it takes a lot of work.  I went to China with the hope of making my life a bit more simple and enjoyable.  While I would love to drive a car or wave at my children across the playground, I knew that probably wouldn't happen after returning from China.  My hope was to be able to tell the meat was done without having to stick my hand in the frying pan or help my children with homework without having to use more than one magnifying glass. 

Treatment in China

I traveled to China in September of 2009 with my Mother and seven year old daughter and received nine umbilical cord blood stem cell treatments over a period of 35 days.  Five of my treatments were given intravenously and four were spinal injections.  I also worked twice a day five days a week with Forrest, who was an amazing therapist to do Acupuncture, Electro wave therapy, Massage, Ear Point therapy and Fire Cupping.  I thoroughly enjoyed the opportunity to learn about Traditional Chinese Medicine. 

Condition After Treatment

Within a week of two treatments my eyes began to track better.  The first eye exam showed that I could see the chart at 120 cm and after one week I could definitely see the eye chart better.  After two weeks I could see the eye chart from 162 cm and I could read some icons on our laptop computer that I could not see when we arrived.  Over the rest of our stay, my eyes continued to track better and when we left I could see the chart from 200 cm.  The distance had almost doubled.  We were thrilled!

Condition Today

I have been home now for over three months and my vision continues to improve slowly.  A few short weeks after returning home I went to a football game and could see the time clock.  We always sit in the same seats and I could never see that before so I knew that was a change.  We were very excited! 
A major change is that my eyes constrict normally now.  Before going to China, I couldn't go from sunlight to a dark room and find my way.  One day we went to a dark restaurant in which I have never been able to maneuver and I was able to find my way with no help.  That is a wonderful improvement that many may take for granted unless they have been in the difficult situation of not being able to find their way. 

After Christmas I pulled out a manual that I previously read with a monocular and a magnifying glass and was pleasantly surprised to find I no longer needed the magnifying glass.  I could read it easily with just the monocular. 

We have a beautiful mountain range where I live and have lived my entire life.  Since the snow has fallen this year, I am always amazed when I see how beautiful they look.  At first, I kept asking my husband why he thought they looked so amazing.  It took me the better part of a day to realized that it was the improvement from the stem cells.  Now I am surprised every time we drive into the city nearby to see how rugged and huge they look. 

In general things do seem a bit easier for me.  I chopped apples the other day without bending over the counter and I seem to recognize people easier.  My trip to China was incredible for me as well as my Mom and Daughter.  We have no regrets in our choices and wish the best to all those who choose to go. 

Thank you Beike,

Shanan

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USA, Age 9

Diagnosis

Tyler was diagnosed with Optic Nerve Hypoplasia three months after his birth when his parents noticed he was not tracking objects.

Condition Prior to Treatment

Tyler had no depth perception. He had very little vision in his left eye, and only light perception in his right eye. His visual acuity was about 20/600 to 20/1200. Tyler traveled with a cane when he was in unfamiliar places.

Treatment Received in China

While in China, Tyler received seven adult stem cell transplants, five via IV and two via spinal.

Condition Following Treatment

While Tyler was in China, he noticed that he began to see more details and textures. He said that he could see more specks on the bathroom counter. Before he may have only been able to see two or three, while in China he noticed he could see twenty or thirty specs. Tyler is better able to navigate new spaces independently.

Tyler's Ophthalmologist tested his eyes before and after he went to China. After returning from China, his Ophthalmologist noted that his optic nerve looked healthier. The left optic nerve had grown by about forty percent, and the right optic nerve had grown by about fifteen percent. The optic photos showed that he had increased blood flow and the color was much pinker rather than gray.