StemCellsChina.com

Fill out my online form.
Toddler Battling Triple E Virus 列印 E-mail
腦神經損傷
週四, 15 五月 2008 08:00
There are no translations available.


Source: The Boston Channel

Family Trying To Raise Funds For Treatment

PLYMOUTH, Mass. -- She's just 3 years old and she's dealing with a disease with a name bigger than she is. A little Plymouth, Mass., toddler who wants only to be identified as Allie is battling Eastern equine encephalitis, or Triple E, and it's debilitating.

While her family tries to raise funds to get her treatment, health officials are hoping her story will raise awareness as mosquito season begins.

Allie's story grabbed the public's attention when she was only an infant. She was infected with the virus by a mosquito when she was only 3 months old and she was not immediately diagnosed. The bite changed her life forever.

"She has a hard time controlling her muscles and she gets frustrated that she can't. It lets us know that her body's not, her mind's not letting her body do what it needs to do," her mother Tina said.

Triple E caused severe brain damage. Allie can't speak and there's little she can do on her own. With constant therapy, however, she has improved. She's off her feeding tube and is finally seizure free.

"She's just a beautiful, wonderful little girl who has such potential that there's nothing we won't try for her," her father, Tait, said.

Now the family will go all the way to China, where stem cell treatment is legal and may provide some promise for Allie.

"The stem cells are from the umbilical cords of healthy babies. They're what normally would be thrown away as medical waste that are amazingly helpful in many cases," Tina said.

The treatment remains experimental.

"It may not be the answer to some of these problems, but I think, when you're in these situations you need to have hope," said Dr. Alfred DeMaria of the Massachusetts Department of Public Health.

What they also need is money. Allie's parents have started a fund at Citizens Bank for donations that will help them pay for the $25,000 trip.

"We're just regular people, so we don't have trust funds and bank accounts to help us along and help us explore things for Allie," Tina said.

After hearing of Allie's story, the Ray Tye Medical Aid Foundation said if the family falls short of the $25,000 fundraising goal by May 30, they would make up the difference.

After much research, Allie's trip to a hospital in China is set for June. The only question now is whether the treatment will work.

LAST_UPDATED2
 

Site Search

患者經曆

漸凍人-Reynolds先生
ALS - Ms. Brooks
小腦萎縮症 - Arruda先生
小腦萎縮症- Blair先生
小腦萎縮症-Crowter女士
小腦萎縮症-Graf女士
小腦萎縮症-Gray女士
Ataxia - Ms. Jones
小腦萎縮症-K. Graf先生
小腦萎縮症-Knoblauch先生
Ataxia - Mr. Martin
Ataxia - Mr. Nate
Ataxia - Mr. P. Flynn
Ataxia - Mr. R. Flynn
小腦萎縮症-T. Graf先生
Ataxia - Mr. Wallace
Autism - Mr. Lachlan
Autism - Ms. Maria
自閉症-Pacis先生
自閉症-Wang先生
Autism - Mr. Yu
Batten Disease - Mr. Dell'Aringa
Brain Injury - Mr. Anduha
Brain Injury - Mr. Ashton
腦外傷-Blazevic先生
腦神經損傷-Cui先生
Brain injury - Mr. Hayward
Brain Injury - Ms. McAfee
Brain Injury - Mr. Nguyen
Cerebral Palsy - Mr. Andrew Ricci
腦性麻痺-Bocskai先生
Cerebral Palsy - Mr. Boles
腦性麻痺-Caprioru先生
Cerebral Palsy - Ms. Ella
Cerebral Palsy - Mr. Gryphon
Cerebral Palsy - Mr. Lawrence
Cerebral Palsy - Mr. Nicholas
Cerebral Palsy - Ms. Sosa
腦性麻痺-Teskey先生
Cerebral Palsy - Ms. Tahiliani
腦性麻痺-Phang先生
Cerebral Palsy - Mr. Will
癲癇- Madura女士
Epilepsy - Ms. Pinczker
Friedriech運動失調症-Maher女士
Friedriech's Ataxia - Mr. Zachary
Glut1- DS - Ms. Jordan
Heart Disease - Mr. Maxwell
Huntington's - Ms. Arroyo
ION - Mr. Stevens
Muscular Dystrophy - Mr. Russ
多發性硬化-陳女士
多發性硬化-Frey先生
多發性硬化-Glenn女士
MS - Ms. Helm
多發性硬化- Kay女士
MS - Mr. Kenneth
MS - Mr. Ozzello
MS - Ms. Sprague
ONH - Ms. Barlett
ONH - Ms. Hallie
ONH - Mr. Justin
ONH - Mr. Lawrence
ONH - Ms. Lilli
ONH - Ms. Manuela
MSA - Mr. Haywood
Parkinson's - Mr. Buckley
Parkinson's - Mr. Brown
Parkinson's - Mr. Budiono
Parkinson's - Ms. Chin
Parkinson's - Mr. Devlin
Parkinson's - Ms. Edwards
Parkinson's - Ms. Kluber
Parkinson's - Ms. Rouen
帕金森病-Thomas女士
Parkinson's - Mr. Woodward
ROP - Shirdesh
ROP - Tatyana
Rett Syndrome - Ms. Laura
SMA - Ms. Gologan
SMA - Mr. Justin
脊髓性肌肉萎縮-Loredana女士
SMA - Ms. Nicole
SMA - Ms. Nirma
SOD - Claire
SOD - Ms. Frenette
SOD - Ms. Giulia
SOD - Ms. Megan
SOD - Mr. Peterson
脊髓損傷-Aldrich先生
脊髓損傷-Allen先生
Spinal Cord Injury - Mr. Ben
Spinal Cord Injury - Mr. Carson
脊髓損傷-Iordache先生
Spinal Cord Injury - Ms. Jennifer
Spinal Cord Injury - Mr. Maricelli
脊髓損傷-Pai女士
脊髓損傷-Radu女士
Spinal Cord Injury - Mr. Savage
脊髓損傷-Zuo先生
中風-Hollis女士
中風-Jing女士
中風-Li先生
中風(小兒)-Farkas女士
中風(幼兒)-Gresco女士
中風(幼兒)-Hildko先生