It took two months for Macie’s family to put her on a plane after learning that there was a treatment available for Optic Nerve Hypoplasia. All the way to the airport, a television crew pushed the family back telling them not to leave. It was 2008 and treating Optic Nerve Hypoplasia with adult stem cells was still a new treatment.

Macie’s mother was under a lot of pressure. She had a teenager who wanted to drive.

We’re excited to bring you this video from Macie and Shel including home video they shot during Macie’s first round of treatment in 2008. Click on the picture above to see the video and her patient experience.

But Macie’s not the only one with news. There are others. Christian of St Augustine, FL has been in the news recently following his trip to China for stem cells. Christian too has a severe visual disorder. The press writes “his mom calls her son a miracle and the community her saving grace,” thanking them for making the trip possible.

Mick's Blog Covers Ataxia Journey

Begun by Mick's caregiver, Don, six days before their journey to China for treatment of Mick's Ataxia mid-July with current updates after their return home, this is a great insider's look at a month's treatment in a Chinese hospital. First-hand experience like this can be invaluable when figuring out how to prep meals and manage life away from home.

We even hear he's doing better than he arrived in China. That's some great news.