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Lawrence - ONH Stem Cell Patient Imprimare Email
ONH/SOD
Luni, 07 Iunie 2010 16:55
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Optic Nerve Hypoplasia

17, USA

Lawrence's Blog

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Condition


Optic Nerve Hypoplasia.


Course of Treatment


Lawrence received 9 Stem Cell Transplants, 4 via IV and 5 via spinal.  He also received electric wave therapy and acupuncture.


Reason for Coming for Treatment


Lawrence Brown III was born with Optic Nerve Hypoplasia. The doctors originally told his family that there was no treatment available for ONH. Lawrence had limited light perception and was able to see colors. However, he was not able to distinguish shapes or any detail.

He used several tools to help aid his vision such as JAWS, a talking computer program, and a cane. He was unable to read print letters, and learned to read Braille. Lawrence can read English, Spanish, and French Braille.
 
Lawrence was very successful in his every day life, but his family felt that any treatment available to help give him more independence was worth a try.

Condition After the Treatment


While Lawrence was receiving treatment in the hospital, he began to notice several changes to his vision. He noticed that light seemed much brighter to him, and colors appeared much more vivid. He was able to distinguish objects when walking outside, like flowers or written Chinese characters on walls. The nystagmus of his eyes decreased significantly.

He began to see the movement of people and objects instead of just feeling it. This often caused him to become dizzy and uncomfortable.

During his stay, Lawrence was able to see and recognize extremely large print letters for the first time in his life. He was able to find objects he had dropped on the floor.

After returning home, Lawrence noticed that he was able to see shadows at night. People's facial features became clearer. He was able to pick up a dropped object on the floor without searching for it with his hands.

Lawrence was able to march out with his marching band for short distances without having anyone help him.  Maneuvering through streets and crowded sidewalks became easier for him. Lawrence learned to read the print alphabet at 400 font. He stopped using his cane while at school.







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Experienta pacientului

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Ataxie - D-ra Crowter
Ataxie - D-ra.Graf
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Ataxia - Mr. Martin
Ataxia - Mr. Nate
Ataxia - Dl. P. Flynn
Ataxia - Dl. R. Flynn
Ataxie - Dl.T. Graf
Ataxie - Dl.Wallace
Autism - Mr. Lachlan
Autism - D-na.Maria
Autism -Dl.Pacis
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Autism - Dl. Yu
Boala Batten - Dl.Dell'Aringa
Brain Injury - Mr. Anduha
Afectarea Creierului - Dl.Ashton
Afectiuni ale Creierului - Dl.Blazevic
Afectiuni ale Creierului - Dl.Cui
Afectarea Creierului - Dl.Hayward
Afectiuni ale Creierului - D-ra.McAfee
Afectarea Creierului - Dl.Nguyen
Cerebral Palsy - Mr. Andrew Ricci
Paralizie Cerebrala - Dl.Bocskai
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Paralizie Cerebrala - D-ra.Caprioru
Paralizie Cerebrala - D-na.Ella
Cerebral Palsy - Mr. Gryphon
Paralizia Cerebrala - Dl.Lawrence
Paralizie Cerebrala - Dl. Nicholas
Cerebral Palsy - Ms. Sosa
Paralizia Cerebrala - Dl.Teskey
Paralizia Cerebrala - D-ra.Tahiliani
Paralizie Cerebrala - Dl.Phang
Paralizia Cerebrala - Dl.Will
Epilepsie - D-na. Madura
Epilepsie - D-na. Pinczker
Ataxia Friedriech - D-na.Maher
Ataxia Friedreich - Dl.Zachary
Glut1- DS - D-na. Jordan
Boala Inimii - Kevin
Huntington - D-na. Arroyo
Neuropatie Optica Ischemica - Dl.Stevens
Muscular Dystrophy - Mr. Russ
Scleroza Multipla - D-ra. Chen
Scleroza Multipla - Dl.Frey
Scleroza Multipla - D-ra.- Glenn
Scleroza Multipla - D-ra.- Helm
Scleroza Multipla - D-na.Kay
Scleroza Multipla - Dl.Kenneth
MS - Mr. Ozzello
Scleroza Multipla - D-ra.- Sprague
Hipoplazia Nervului Optic - D-ra. - Barlett
ONH - Ms. Hallie
Nervul Optic Primar- Hipoplazie - Dl.Justin
ONH - Mr. Lawrence
ONH - Ms. Lilli
ONH - Ms. Manuela
Msa - Dl.Haywood
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ROP - Tatyana
Sindromul Rett - D-ra.Laura
Atrofie Musculara Spinala - D-ra. Gologan
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Atrofie Musculara Spinala - Dl.Loredana
SMA - Ms. Nicole
SMA - Ms. Nirma
Displazie Septo Optica - Claire
SOD - Ms. Frenette
SOD - Ms. Giulia
SOD - Ms. Megan
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