StemCellsChina.com

Fill out my online form.
Stem Cell Appeal Reaches Target Imprimare Email
Septo-Optic Dysplasia
Duminică, 12 Aprilie 2009 09:21
There are no translations available.


Source: BBC

The family of a blind toddler are set to fly to China so he can receive stem cell therapy in the hope he can get some sight.

Joshua Clark, 22 months, from Caernarfon, Gwynedd, suffers from a brain disorder known as Septo Optic Dysplasia.

Doctors in this country had said there was no treatment, but an appeal to raise £40,000 to get him to China has hit its target.

They fly out for treatment on 29 April.

His mother Joanna Clark said she was counting the days to the trip.

"I can't believe the money has been raised and in such a short period of time," said Mrs Clark.

"We fly out three weeks today, and I'm counting down the days."

Joshua will receive the treatment at the Beike Biotechnology Company's Stem Cell Treatment and Rehabilitation Centre at Zhejiang Xiaoshan Hospital in the city of Hangzhou, in eastern China.

He will be in hospital for 40 days, receiving eight stem cell treatments, as well as physiotherapy and acupuncture to help with his overall development.

Then when the family returns home to Caernarfon he will spend an hour a day, for 12 months, inside a hyperbaric oxygen chamber which has been bought with money from the fund.

Measuring around seven foot by three foot, the chamber has been installed at the family home.

Oxygen tent

"The idea is that the oxygen will help Josh improve further and we'll take toys and a CD player in there to entertain him," said Mrs Clark.

For the China trip Joanna and Anthony Clark will be joined by Joanna's mother Gill Doughty.

"She'll be staying in a hotel whilst me, Anthony and Josh, will be at the hospital in a family room," said Mrs Clark.

"I hope she'll be able to help us though, especially during any afternoons when we don't need to be in the hospital, so we can get out and about," she added.

The outcome of the treatment is uncertain, but Mrs Clark said she had been given hope by the story of a little girl from Northern Ireland who had gone for the treatment only able to see light.

"She can now make out shapes up to three feet away, which is amazing for her.

"The difference with us is, of course, that Joshua can't see anything at the moment, so we don't know what to expect.

"Once we'd found the treatment however I couldn't have lived with myself unless we'd done everything possible for him to try it.

"It works better in young children, and this is his only chance," she added.

LAST_UPDATED2
 

Cautare site

Experienta pacientului

ALS - Dl.Reynolds
ALS - Dl. Brooks
Ataxie - Dl. Arruda
Ataxie - Dl. Blair
Ataxie - D-ra Crowter
Ataxie - D-ra.Graf
Ataxie - D-ra.Gray
Ataxie - D-ra.Jones
Ataxie - Dl.K.Graf
Ataxie - Dl.Knoblauch
Ataxia - Mr. Martin
Ataxia - Mr. Nate
Ataxia - Dl. P. Flynn
Ataxia - Dl. R. Flynn
Ataxie - Dl.T. Graf
Ataxie - Dl.Wallace
Autism - Mr. Lachlan
Autism - D-na.Maria
Autism -Dl.Pacis
Autism - Dl.Wang
Autism - Dl. Yu
Boala Batten - Dl.Dell'Aringa
Brain Injury - Mr. Anduha
Afectarea Creierului - Dl.Ashton
Afectiuni ale Creierului - Dl.Blazevic
Afectiuni ale Creierului - Dl.Cui
Afectarea Creierului - Dl.Hayward
Afectiuni ale Creierului - D-ra.McAfee
Afectarea Creierului - Dl.Nguyen
Cerebral Palsy - Mr. Andrew Ricci
Paralizie Cerebrala - Dl.Bocskai
Paralizie Cerebrala - Dl. Boles
Paralizie Cerebrala - D-ra.Caprioru
Paralizie Cerebrala - D-na.Ella
Cerebral Palsy - Mr. Gryphon
Paralizia Cerebrala - Dl.Lawrence
Paralizie Cerebrala - Dl. Nicholas
Cerebral Palsy - Ms. Sosa
Paralizia Cerebrala - Dl.Teskey
Paralizia Cerebrala - D-ra.Tahiliani
Paralizie Cerebrala - Dl.Phang
Paralizia Cerebrala - Dl.Will
Epilepsie - D-na. Madura
Epilepsie - D-na. Pinczker
Ataxia Friedriech - D-na.Maher
Ataxia Friedreich - Dl.Zachary
Glut1- DS - D-na. Jordan
Boala Inimii - Kevin
Huntington - D-na. Arroyo
Neuropatie Optica Ischemica - Dl.Stevens
Muscular Dystrophy - Mr. Russ
Scleroza Multipla - D-ra. Chen
Scleroza Multipla - Dl.Frey
Scleroza Multipla - D-ra.- Glenn
Scleroza Multipla - D-ra.- Helm
Scleroza Multipla - D-na.Kay
Scleroza Multipla - Dl.Kenneth
MS - Mr. Ozzello
Scleroza Multipla - D-ra.- Sprague
Hipoplazia Nervului Optic - D-ra. - Barlett
ONH - Ms. Hallie
Nervul Optic Primar- Hipoplazie - Dl.Justin
ONH - Mr. Lawrence
ONH - Ms. Lilli
ONH - Ms. Manuela
Msa - Dl.Haywood
Parkinson - Dl.Buckley
Parkinson's - Dl. Brown
Parkinson's - Dl.Budiono
Parkinson's - D-ra.Chin
Parkinson - Dl. Devlin
Parkinson - Dl.Edwards
Parkinson's - D-ra.Kluber
Parkinson's - D-ra. Rouen
Parkinson's - D-ra.Thomas
Parkinson's - Dl.Woodward
Retinopatie Optica Prematura - Shirdesh
ROP - Tatyana
Sindromul Rett - D-ra.Laura
Atrofie Musculara Spinala - D-ra. Gologan
Atrofie Musculara Spinala - Dl.Justin
Atrofie Musculara Spinala - Dl.Loredana
SMA - Ms. Nicole
SMA - Ms. Nirma
Displazie Septo Optica - Claire
SOD - Ms. Frenette
SOD - Ms. Giulia
SOD - Ms. Megan
SOD - Mr. Peterson
Traumatism Vertebro-Medular - Dl.Aldrich
Traumatism vetebro-medular - Dl.Allen
Traumatism Vertebro-Medular - Dl. Ben
Traumatism Vertebro-Medular - Dl. Carson
Traumatism vetebro-medular - Dl.Iordache
Spinal Cord Injury - Ms. Jennifer
Traumatism Vertebro-Medular - Dl. Maricelli
Traumatism Vertebro-Medular - D-ra. Pai
Traumatism Vertebro-Medular - D-ra. Radu
Traumatism vetebro-medular - Dl.Savage
Traumatism Vertebro-Medular - Dl. Zuo
Accident Vascular - Dl. Hollis
Accident Vascular - Dl.Jing
Accident Vascular - Dl.Li
Accident Vascular - D-ra.Farkas
Accident Vascular - D-ra. Grecsó
Accident Vascular - Dl.Hildko